CSR 3 months on - update

[CSRScotland]

Hi there, I had my repeat photographs yesterday. I first noticed my CSR 13 weeks ago, had changes at 7 weeks in and then started to feel things improving from week 10. Now when I check on the amsler grid I feel it is a lot clearer although definitely not quite gone. Working at screens has become much easier again and I felt sure my photographs would be positive.

However, the optician says the photograph has not changed at all since my first one. There is an area of redness and patches of dark pigmentation. So I have now been referred for an OCT scan. She said there was no fluid, which confused me as I thought that’s what had caused my distortion? Can anyone explain better what I’m experiencing?

I have my scan on 17th November.

Thanks xxx

[ramsayn]

Hi, from my experience the distortion is there after the fluid is gone and then slowly improves as the layer in the Macula recovers. This is what’s been pointed out to me on the OCT scans. The layer slowly flattens and the distortion reduces.

[CSRScotland in reply to ramsayn]

Hi Ramsayn

Thanks for your reply. This helps me understand better, thank you!

Have you found any triggers for your episodes or anything that aids the recovery?

I’ve been having leafy greens at least twice daily in my nutribullet since diagnosis but am not taking any supplements etc.

Thanks

K

X

[Railmaster]

Hi

I too have recently had an OCT for my left eye following deteriorating vision.

Unknown to me, The consultant said that he could see from the scans that at one time I have had active CSR.

But, it was now resolved and there was no fluid.

Unfortunately, it has left me with what he described as a ‘Disturbance Retina Pigment Epithelium ‘, which cannot be reversed or treated.

He pointed to what look like ‘moth eaten’ areas, which is the permanent damage causing vision problems.

I would be interested to hear from anyone else who has had a similar diagnosis?

[CSRScotland in reply to Railmaster]

Gosh it’s all so complicated isn’t it, and so different for everyone. How is your vision? Do you do any screen work?

Take care & thanks for your response.

K

X

[Railmaster in reply to CSRScotland]

Unfortunately, my vision is pretty poor in my left eye, but, I’m sure there’s a lot of people worse off than me, so, that’s the way I look at it. It’s frustrating though, because my hobbies involve reading and computer work. I’ve had to ditch my laptop and move to a monitor for the bigger screen. I’ve also bought a proper reading lamp, which has helped. Before the scan, I was hoping a change of spectacle prescription would help, but, the consultant did say I shouldn’t expect any significant improvement. The strange thing about all this , is that I had no idea I had CSR although I did suffer from headaches and temple pain on my left side. But, I guess that could have been due to any number of causes. Good luck with your scans . I wouldn’t worry 😉 I’m sure you’ll be fine . Let us know how you get on. Take care