Chronic CSR with epitalial dettachment ste... - Macular Society

Macular Society

5,227 members2,586 posts

Chronic CSR with epitalial dettachment stem cell treatment

pila123 profile image
8 Replies

Hello, does anyone know about stem cell therapy? My brother has chronic csr with epitelial dettachment (we dont know if this ever comes down, he is afraid it will progress to DMAE but his is only 38),,, he started stem cell treatment, which is stem cells inyected to his arm, aim is to improve his body's defense system and avoid more fluid from leaking,,, does anyone know about this? it is expensive and seems very experimental but we dont know what else to do.... there is a new leak in his good eye which was not there before and they want to seal it with argon laser, but we are affraid eventually there will be new leaks and if one leak gets to the center then well, what then? seems like a nightmare honestly, cant find a solution and cant find success examples of people with chronic csr when the disease just stopped one day and didnt get worse, this is our family's dream now,,, any info, ideas, suggestions, would be greatly appreciated, thank you everyone xo

Written by
pila123 profile image
pila123
To view profiles and participate in discussions please or .
8 Replies
ironbrain profile image
ironbrain

"Oral eplerenone at a dose of 25–50 mg/day has been found to be effective and well-tolerated for the treatment of chronic CSCR."

journalretinavitreous.biome...

Autoimmune approach:

"... retrospectively evaluated methotrexate as a treatment for chronic CSCR in 11 eyes. They found that the mean CMT and visual acuity improved significantly compared to baseline values, and 9 eyes (83%) remained dry after completion of the treatment regimen."

ncbi.nlm.nih.gov/pmc/articl...

sciencedaily.com/releases/2...

Interleukin-17 (IL-17) is thought to play a (significant) role in CNV/AMD, but I can't find too much of it or any other interleukin in relation to CSR.

Rosalyn-helpline profile image
Rosalyn-helplinePartner

Dear pila123,

Where is your brother receiving stem cell therapy?

Please contact the Macular Society Advice and Information Service if you would like to discuss this further.

The Macular Society Advice and Information service is open 9am – 5pm Monday to Friday on 0300 3030 111.

Alternately, you can contact us via:

help@macularsociety.org

Kind regards,

pila123 profile image
pila123 in reply to Rosalyn-helpline

In Mexico, but I believe this is an experimental thing, I dont know if it would work since I cant find a real success story anywhere,,, I dont believe it is covered by insurance either and it is really expensive,,, we dont know what else to do

Rosalyn-helpline profile image
Rosalyn-helplinePartner in reply to pila123

Dear pila123,

Please contact us for further discussion.

Do you have a link to information on it?

Kind regards,

Macular Society Advice and Information Service

pila123 profile image
pila123 in reply to Rosalyn-helpline

Hello Rosalyn, I dont have a link but I can send you the info I have if you send me an email, I cant recommend anything yet as I dont know if it really works,, its really experimental and I believe a healthy diet and exercise and being close to nature should help too,,, let me know if you have any advise, regards

Rosalyn-helpline profile image
Rosalyn-helplinePartner in reply to pila123

Dear pila123,

Our email address is:

help@macularsociety.org

Kind regards.

orangesky profile image
orangesky

I have read about it wonder if it’s in Canada

pila123 profile image
pila123

...he is taking eplerenone but has not really worked as the problem is getting worse and worse

Not what you're looking for?

You may also like...

CHRONIC CSR BOTH EYES, any success stories?

Hello, I am writing on behalf of my brother, we live in Mexico so there is not a lot of information...

Chronic CSR, doctors say treatment not advised, PLEASE HELP

Hello everyone, I am writing today hoping someone would have some answers/advise... my brother who...

Flickering in vision with csr

Further to last post I only ever found one internet reference to the flickering in vision that I...

Stem Cell Research Webinar

World-leading eye researcher Professor Pete Coffey, who is investigating the use of stem cells to...

4+ ears with CSR

Hi everyone, I've been reading with avid interest all of the above posts. When I was initially...