Happy new year to all, I would appreciate advice on wearing contact lenses with Wet AMD?

[MacularAnn]

I am having Eyelea injections in both eyes after 6 months of Avastin that stopped working.

Since my injections my specs don’t seem to be as good, but today I tried my contact lenses in and found my sight to be a little better, I am wondering if anyone else has found this?

I obviously can’t use contact lenses straight after injections for at least 5 days.

Is it possible to have lenses fitted with my erscription in to the future?

I wish you all a very happy , healthy and successful 2019.

Kindest regards

Ann

[2468G]

Hi Ann

Firstly, Happy New year to you too.

I also am a glasses and contact lens wearer and have received 6 Eylea injections from between January and September of last year.

There is no reason you won't be able to get a new prescription for your contact lenses. I got new glasses and lenses last year. I wear daily disposable contact lenses and the prescription can be changed at any time. My prescription is approx -12 in both eyes.

Before having treatment for CNV I used to find that my vision was better with contacts than glasses. Now I actually have better vision wearing my glasses which is the opposite to you.

Also, even more puzzling, is that if I have my contacts in and I put my reading glasses on (which are +2) I can see distances more clearly in my CNV eye. This makes no sense as reading glasses usually make distances blurry. It's a strange disorder!

Best wishes to you. 2468G

[MacularAnn in reply to 2468G]

Thank you for responding so quickly, as you say it’s a very strange disorder that seems to change so much, also hard to explain to people.

I can’t becrushed any more or get quite anxious, not me at all really.

Quite a job making sure glasses are clean got all necessary glasses with me where ever I go.

Did you notice any changes with light problems on Eyelea? I seem to be having more problems than before.

Hoping 2019 will be kind to you.

Kindcregards

Ann x

[2468G in reply to MacularAnn]

Hi Ann.

I am way more sensitive to light these days and always have my sunglasses with me when I'm out and about. (I have so many pairs of prescription glasses and sunnies and readers).

Also my night vision in my CNV eye is not good and I hate the glare from on coming traffic at night.

It does all add up to a lot of anxiety for me. I am seeing my consultant on Monday following my last scan. He wants to see me so I am feeling extra worried at the moment. 2468G

[MacularAnn in reply to 2468G]

Oh I hope all will be ok on Monday, try not to worry as we also have to keep our stress levels under control, and worrying in advance will not do you any good so best have faith and wait!

Please let me know how you get on.

The extra sensitivity to light is so annoying and night time driving a no no! Or actually travelling as a passenger.

So I am thinking of you, let us be as positive as possible and find some peace and gratitude for the sight we have left.

Love Ann xxxx

[2468G in reply to MacularAnn]

Hi Ann

Thank you for your kindness, I am trying to stay as relaxed as possible. I will certainly let you know what happens Monday morning.

You sound such a caring person. Xxx

[2468G in reply to 2468G]

Hi Ann

I'm back from the eye clinic. This extra appointment was generated as I didn't do so good at my last eye test. Apparently I lost a few letters. Today, strangely I did well so after another scan which the consultant checked and a good look at the back of my eye he said he wasn't concerned and he will see me in 6 weeks which is the longest I have gone between appointments.

I'm happy with this.

Thanks for your interest. 2468G

[MacularAnn in reply to 2468G]

Hi, so pleased to hear your appointment went quite well, it’s strange how we miss letters at times but sounds like all good at the back of your eyes, good news you have a 6 week break though.

We have to be vigilant and eat well and be kind to ourselves. Look after yourself.

Kindest regards

Ann

[2468G in reply to MacularAnn]

Thanks Ann.

I'm really trying with the healthy diet and exercise. Doing everything I can to help my eye health. My poor family get a big dollop of kale with virtually every meal.

2468G

[MacularAnn in reply to 2468G]

Yes it’s great! We are the converters! hope you are ok

Love Ann x

[pinkperfection in reply to 2468G]

Good luck for Monday stay positive. I know that is easier said than done. Had review and eyelea injection today and my eye does seem to be responding hoping it stays that way. It really is a roller coaster isn't it? Let me know how you get on.

[2468G in reply to pinkperfection]

Hi pinkperfection

Nice to hear from you again. Thank you I am trying to stay positive but just a bit stressed as consultant requested to see me in a weeks time after looking at my scan on the 24th December. This Monday was obviously earliest they could squeeze me In. He has written that although my eye appears dry the visual acuity is less and that's why he wants to see me.

Yes you are right it certainly is a rollercoaster but I am so pleased to hear your eye is responding well to Eylea. Hope you are ok after today's injection.

Best wishes. 2468G

[pinkperfection in reply to 2468G]

Thanks for your reply. I must say the injection I had Friday went better than any I have had before. Normally I have a bloodshot eye for several days but this time it is quite clear. Probably because it was done by the new consultant who has recently taken over. Also there was a holdup for scans and seeing the doctors so they were waiting for customers for injections which meant they had more time - certainly makes a change! I do hope you get on ok tomorrow, keep me posted.

[2468G in reply to pinkperfection]

Hi pinkperfection.

I'm back and things are ok. I did a lot better on my eye test today in my CNV eye. Reached the next to bottom line so the consultant was happy. Scan looked dry too. The jury is out on glaucoma. My puff test is good but I missed some lights on the field test but that coujd just be me being very myopic so they will retest in the future. My consultant says I can go 6 weeks before my next assessment which is the longest I have gone. It's actually exactly a year since I had my acute appointment when all this first started.

Thanks for your concern. Keep me informed of your progress please. 2468G

[Catseyes235 in reply to 2468G]

Luckily my dr sees me if at all after the scan so no waiting for results. She saw me last week and it was all good news -extra time between injections - hurrah -

so hopefully it will be for you too!

[2468G in reply to Catseyes235]

HiCatseyes235

Such a relief when you get good news. Pleased to hear things are going well for you.

I also sometimes see consultant after scan. All a bit different this time.

2468G

[StokeySue]

When I first had injections I was wearing daily disposable lenses

No problem with the macular disease (in my case myopic), in fact helpful as it makes peripheral vision more useful, but of course I had to stop wearing them for a few days every time I had an injection, as you have to wait for the puncture wound to heal, usually 4 days but obviously check at your own clinic

[MacularAnn in reply to StokeySue]

Thanks StokeySue,

Yes I agree there is definitely an improvement in sight when wearing lenses, but I do wonder why? Infection is the worry after injections for sure but we have to find best way forward. Hoping all is going well for you. All the best for 2019.

Kind regards

Ann x

[StokeySue in reply to MacularAnn]

Contact lenses (if the right prescription) will always tend to give you better vision than specs, partly because they are closer to the eye and the geometry of the optics is better. And also because they correct the whole of your field of vision while specs always crop a bit off the edges.

I wasn’t generally worried about infection wearing daily disposables but obviously when the puncture wound is open you don’t want to to touch your eyes at all, might do damage or add infection

[MacularAnn in reply to StokeySue]

Thanks Stokeysue, that’s does make so much sense, I did sort of think that might be the case.

I agree no touching and avoiding any possibility of infection.

My latest regime is juicing that includes at least 2/3 kiwis of a morning, I read that trials had shown a 32% improvement in AMD by eating them daily.

I do feel a little improvement after about a week? Hard to tell we just have to be as healthy as possible.

Thanks again, hoping you are doing well.

kind regards

Ann

[MacularAnn in reply to MacularAnn]

Here is part of an article I found, the only problem with eating 3 kiwis is thecrush to the loo on a regular basis,

Macular degeneration is the leading cause of vision loss, and kiwis might help protect your eyes from it. One study found that by eating three servings of fruit a day, macular degeneration was decreased by 36 percent. Kiwis’ high levels of zeaxanthin and lutein are thought to contribute to this effect.

Ann x

[2468G in reply to MacularAnn]

Hi Ann

I didn't know about the kiwi fruit. Something else for me to add to my ever growing list of fruit and vegetables. Not one of my favourites but will give them a go. 2468G

[Catseyes235]

What do the medics think? My eyesight has never been really bad but has improved to 20/20 for distance so my slight lenses I wear for distance are now annoying but they are light sensitive and the reading part is almost okayIsh. May just get ordinary sunglasses for now and prescription readers as the cheapos no longer great as yes differ. I was told not to get new prescription until we see how treatment goes. Reducing glare seems to be recommended so I guess sunglasses are needed whether you have contacts or not?