A little confused: Had my last injection on... - Macular Society

Macular Society

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A little confused

Dobson11 profile image
11 Replies

Had my last injection on August 13 went for scan October 3rd

Said I would here in two weeks did not see the doc on that occasion,did not hear so rang and they said they were behind I then had a letter to say fluid behind the eye and would need 1 injection it is now nearly six weeks and still not heard I am a little worried as I don’t want y eye to get worse will ring again tomorrow but hate bothering people

Dobson11

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Dobson11 profile image
Dobson11
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11 Replies
RandyM profile image
RandyM

Hi Dobson11, Never be afraid to bother people, especially if it concerns losing your eye sight or other health concerns. 6 weeks is totally unacceptable to wait to hear from them. Tell them you MUST get in soon or you will file a complaint.

Even if they are too busy and behind, it is no excuse to cause damage to your precious eyesight. They can squeeze you in. If necessary, see if you can get another doc/facility to take you ASAP. Hugs and good luck to you!

Dobson11 profile image
Dobson11 in reply to RandyM

Thank you I will

Bobbie915 profile image
Bobbie915

That sounds like very good advice from RandyM.

Ayralin profile image
Ayralin

You must always be your own health advocate. I am a nurse and medical folk are human. Mistakes are made. Details get lost. As a nurse. I tried to advocate for my patients, yet always told them to ask questions, if something worried them to speak up. I would rather be known as a "bothersome" patient than to have something missed. Call and let us know what happens. Hugs and good luck!

FireDrake profile image
FireDrake

This lack of timely appointments has also happened to me Ring the department - if this does not work then ask to speak to the consultant's secretary if this does not work contact the Macular disease society I would like to know how many people actually get appointments as is clinically desirable GOOD LUCK Keep a diary of your consultations and your injections

Eyeproblems profile image
Eyeproblems

If I was you I would ring the clinic and explain the situation. If you have a bleed you need an injection ASAP. Looks a though you have been missed for some reason. Never worry about phoning if you need to.

Best wishes and I hope your clinic sorts your next injection soonest.

Dobson11 profile image
Dobson11 in reply to Eyeproblems

Hi

Dobson11 profile image
Dobson11 in reply to Dobson11

Hi I have now got an appointment for Saturday they said they have very busy hence the delay bugood to go now thanks for all the response

pinkperfection profile image
pinkperfection

I also have problems getting appointments so know how you feel. Unfortunately you have to keep persisting as others have said eyesight is important. I have recently gone 11 weeks between injections due to an eye infection. Not good but no choice. I am also beginning to think the injections are not working for me as the fluid behind my eye does not seem to be going away but maybe it is due to delays.

eesnapal profile image
eesnapal

You really must press them. There is an old saying "the only person who will manage your treatment is you!"

The policy at my clinic is immediate treatment - not 6 hours, not 6 days and certainly not 6 weeks.

Make a nuisance of yourself, email the chief executive of the trust. Let me know how you progress

Steven

Exactly the same with me at Liverpool. I have sight test, pressures, photograps, OCT, usually a slit lamp check is not needed, followed immediatey by Lucentis.

I can be in and out within 45mins.

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