Desperate : I was diagnosed with AMD 1,... - Macular Society

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Desperate

astralii profile image
7 Replies

I was diagnosed with AMD 1,5 years ago aged 33 and received 3x Avastin treatment what stopped bleeding for a year. Recently I noticed some changes so I went to check it up and I was advised to get an injection and come back in 6 weeks. I got 2nd injection a week ago. Everything was ok until now where my vision is getting very blurry and it’s like at the beginning when it all started. I’m am very Worried cause I know that injections are given every 4weeks. I don’t what else they can do to help me or what I should do to help it. I’m going to the hospital on Monday morning.

Regards

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astralii
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7 Replies
AMD6yr profile image
AMD6yr

Hello!

Sound like you might have a cataract forming. Hope it's an easy diagnosis and "fix". Keep me informed of your progress.

rosyG profile image
rosyG in reply to AMD6yr

interesting you say that as I think my cataract has formed quickly with injections and it's very confusing when it happens

AMD6yr profile image
AMD6yr in reply to rosyG

My cataract developed quickly as a side effect of using a steroid eyedrop I was taking because I got an infection folowing an Eylea injection! Still have no sight in that eye, lost it the day I got the infection. Still waiting for a cataract surgery which can be followed up by a vitrectomy to remove the debris left over from the infection. Won't know if I will regain any or all my sight until everything has been done. THAT's scary!

eesnapal profile image
eesnapal

Insist on seeing the head of department and/or seek a second opinion

Steven

Eyeproblems profile image
Eyeproblems

Hi astraliii, sorry to hear your sight is blurry again. You may possibly have a vitreous detachment which makes everything blurry. This has happened to me after an eyelia injection and is taking its time to clear , will be six months when I have next appointment in December . fortunately I haven't had any more bleeds as consultant won't inject until problem cleared up. Maybe it's a cataract but they are usually slow growing. Hope you have good news at your next appointment.

Hugs to you.xx

astralii profile image
astralii in reply to Eyeproblems

I had my eye checked today and head consultant assured me there is no infection,detachment or cataract. There is a fluid and they cannot do anything as my next injection is in two weeks so I’ve got to wait and hope that is not gonna get much worse.

Thank you all for your previous replies

Rosalyn-helpline profile image
Rosalyn-helplinePartner

Dear astralii,

It may be worth ringing your ophthalmologist via their secretary in advance of Monday and expressing your concerns.

Are you having injections for wet AMD? If so, have you another injection scheduled 4 weeks from the date of the last one?

Usually, an initial loading dose of 3 injections is given, once a month for 3 months, then the eye is reviewed. If further injections are required, then how far apart these are administered is then determined by whether an individual is receiving Lucentis or Eylea injections and in the case of Lucentis, which of the 3 possible treatment regimens they are on.

The function of the injections for wet AMD is to suppress the abnormal blood vessels developing behind the retina, stabilise the eye, maintain vision and prevent further damage.

I am copying links to our booklets on Treatments and our Essential care guide to wet AMD:

macularsociety.org/sites/de...

macularsociety.org/sites/de...

Please do not hesitate to contact us if you would like to discuss anything further. The Macular Society Advice and Information service is open 9am – 5pm Monday to Friday on 0300 3030 111.

Alternately, you can contact us via:

help@macularsociety.org

Kind regards,

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