Coping with sunlight

[Annsandra13]

After my first 3 loaded injections I am not really seeing much improvement, I have followed good advice from different posts by buying single vision &varifocals glasses with blue light reflection anti glare frI have bought all the glasses recommended by the Macular society, yellow, orange and very dark. ((my handbag is full)

I am currently in a very sunny region with family and just are not coping outside for very long and my eyes are very painful and it feels that holidays and being out doors will be difficult to cope with.

Has anyone found really good sunglasses that help, a sun visor is helping a little.

I really love the beach and the sea and want to be able to continue to enjoy this.

It it still early days?

[Hidden]

Are your sunglasses polarised? They reduce the light by 50%.

[Annsandra13 in reply to Hidden]

Yes I have always used Polarised. Just looking for the most effective for me that hopefully look ok?

Kindest regards

Ann

[LuvmyGodnotAMD in reply to Annsandra13]

I just got prescription glasses made with light reflective lenses& Polaroid plus UV resistance. Have you considered getting prescription sunglasses? They might be able to make them to ur requirements? Worth a visit 👍🤗🙏🏼 Best Wishes!!

[Annsandra13 in reply to LuvmyGodnotAMD]

Thanks again ! yes that’s exactly what I am going to do but I am trying to source nice wrap around ones, I hope that I can ask the optician to put my single vision prescription into them with uv and Polaroid lenses.

I am not coping with varifocals at all since the wet AMD, how about you? Thanks again

Ann x

[yotboy]

I take it your inventory of glasses includes the wrap-round type to protect from the sides. You might also consider ski glasses. I use very dark wrap round glasses in difficult conditions.

[Fishing1949]

I also suffer from amd. You could consider Norville pls tints several of which have helped with my light sensitivity. I use 480nm lenses for everyday use outside but 540nm on bright days. I have also had improved uv /glare protection when driving by having transparent film fiited to the windows in my car.

I hope this helps.

[Annsandra13 in reply to Fishing1949]

Thank you so very much for your advice, I will source

Norvilleols tints, where did you buy the uv glare protection screen from?

I hope you are coping well with AMD.

Kindest regards

[Hidden in reply to Fishing1949]

Hell Fishing1949 - did you have any problems finding an optician who would get you the Norville pls tint? I had a lot to problems finding one who would, probably because I have severe light sensitivity and need an anti-reflective coating on the back and front of the lens. I got my Norlite PLs melanin brown a few years back and they are not polarised. Are yours polarised? Don't you find the tints that you have very dark and not suited for indoors because mine are for outdoor use. They only had the PLS 450 very bright yellow for indoor use but they were not suited.

[Fishing1949 in reply to Fishing1949]

Sorry to hear of your problems. I have always used Praills of Fareham, Hampshire who have always provided an excellent service and who are very knowledgeable on amd, tints etc.

I hope this helps.

[StokeySue]

Agree with everyone else, you need the fit-over type of sunglasses that blocks light from the sides and top. And they must be polarising.

You also need a hat with a brim, my ophthalmologist insists, and it makes a huge difference. I’ve invested in a Tilley hat, expensive but comfortable and secure even in hot sun with a breeze. But even fun hats from sea front stalls are good if they shade the whole eye area.

I am fast turning into a batty old lady who wears eccentric hats with multiple specs on cords round my neck. I don’t care if it helps me to see!

PS the Tilley online sale is on (no, I don’t have shares 😕 )

[Annsandra13 in reply to StokeySue]

Hi .thanks for your great advice, will invest in a Tilley hat going to look for some classy wrap around polarised sun glasses to add to my collection.

I agree with you we have to have our collection, and coming to terms with the change of persona! As you say may as well be as eccentric looking as possible!

Kindest regards

Ann

[Fishing1949]

Norville has its own website which shows the various tints but the lenses will need to be sourced via your optician. For the window film I used Tintex (Portsmouth). Hope this is useful.

[Annsandra13 in reply to Fishing1949]

Thankyou so very much, very helpful.

How long have you had macular degeneration? I hope your sight has had some improvement?

Wishing you all the best

Ann

[2468G]

Hi Annsandra13

I found I was very sensitive to sunlight after the first couple of injections. I have had 5 now and feel I am not quite as sun sensitive I do however always wear sunglasses over my contact lenses when it's sunny and have had some prescription glasses made which are light reactive but also I have a very dark polarized lens that attaches by tiny magnets onto the lens of the glasses. This is very useful for when I have just had an injection on a bright day.

Hope you find the right glasses to help you continue enjoying the great outdoors. Best wishes to you. 2468G

[StokeySue]

Hope you like the Tilley hat

A word on photoreactive tints

Obviously they work well for some people with macular degeneration

But personally I find that no tint is as good as polaroid, and my big problem is that they don't go back to clear fast enough so walking out of the sunshine indoors is very tricky, as the interior is then far too dark, and I bump into things, Just suggesting nobody spend a lot of money on them without checking if they get on with them (not sure how you do that to be hones)

[Catseyes235 in reply to StokeySue]

I'm just used to carrying both polaroid and reactolites with meal the time. Yes you have to remember to take them off so as not to fall over stuff . . Many times I have gone indoors and wondered why nobody has turned the light on! But when I get buy one get secind free I get one reactolites and one Polaroid. We are certainly told NOT to drive after a scan and injections and are always asked how we got to the hospital. How long this lasts may depend on the individual but I have seen coronas around all lights for a couple of days after.

[Catseyes235]

I have prescription Polaroids which take the glare off reflections and water. They are stronger than reactolites and wouldn't be without them Wish I'd got slightly larger frames though.

[Annsandra13 in reply to Catseyes235]

They sound great! Just waiting to find if my first after my 3 loaded injections to see if there is any improvement on my prescription but doubt that there is ! Varifocals seem a problem, I am ok driving in my long sight glasses with reactive lenses with yellow over glasses and a visor!

Still coming to terms with all the different lighting.

[RosMacularSociety Partner]

Dear Annsandra13,

I am copying a link to our booklet on Protecting your eyes:

macularsociety.org/sites/de...

Please contact us for suppliers details as needed.

The Macular Society helpline is open 9am – 5pm Monday to Friday on 0300 3030 111.

Alternately, you can contact us via:

[e-mail]

Kind regards,

[Fishing1949]

I have two pairs of glasses using Norville tints for amd. 480nm for most days but 560nm for bright days and stronger tints are available. These are only available to opticians from Norville ( they have a website).

I hope this helps.