A strange thing happened

Hi guys, I've been oedema free since last ozurdex and had actually started to believe I'd made it. Then woke up on the 15th with the blurry grey patch again. This has always signified the oedema was back with a vengeance - my heart sank. Blurry still the next day......very upset but decided no point ringing clinic in panic as Dr had said I couldn't have another implant until March at the earliest. I was going to ring them Monday.

Woke up 17th and grey patch gone! Still gone. Amsler fine. Can read and type.

Never has the grey patch gone without inj. and at 16 weeks this implant has lasted longer than previous one did ( if it's not dissolved already).

I shall tell my Dr of course but has this happened to anyone else? Do you think my eye has finally started to drain naturally?

Best of luck to us all x

[Bobbie915]

Gosh Eyesright, that must have been really frightening after all you have been through. So very pleased to hear it has resolved itself. It will be very interesting to know what information you get when you go back for your next appointment. Fingers crossed it will be all good news. Take care x x x

[Hidden]

I can fully appreciate your worry. I have been hovering on the brink of an Ozurdex implant, twice I have resisted it and stayed with my 4 weekly Lucentis shot but this morning similar to you, I have awoken to completely blurred vision in the eye. My 4 week interval for the shot was last Thursday but I had clashing appointments 250miles apart, MRI in Southampton or Lucentis in Liverpool, unable to do both in one day I chose to postpone the poke in the eye until next week. I just hope I made the correct decision and the next shot will remedy the situation. 🤭

[Hidden in reply to Hidden]

I'm pretty sure the inj will clear it up for you. Don't wait too long though - if your inj is more than 7 days away I would say ring your clinic, they may want to use an emergency appt for you ( that's what my clinic usually did) to prevent any permanent damage. Best of luck x

[Hidden in reply to Hidden]

I have an appointment this coming Thursday. I had one previous 5 week injection interval and got away with it but at 6 weeks the oedema increases and it it takes a further 2-3 to get it back under control.

I am now in my 8th year of anti-VEGF injections and I anticipate that at some point I will have to transfer to the steroid.

For several years Avastin worked for me but when that became less effective I went onto Lucentis even though it is off licence for my condition. My retinologist has been reprimanded for using it but he stuck to his guns for which I am eternally grateful.

[Hidden]

I've been pleasantly surprised by my current improvement with the steroid but I understand your reticence, I didn't want it either as it felt like a last resort and I was scared there was nowhere else to go if it failed. All these treatments are a leap of faith but at least we have them.

[Moggie]

Obviously I cannot comment on your treatment or anything medical but just wanted to add my well wishes to you. You are such a huge inspiration to people on here with your medical knowledge and your kindness that I am sure I speak for everyone on here when saying that the change in your vision is wonderful news and long may it last.

Moggie x

[Hidden in reply to Moggie]

Your support , and others', has been the world to me. Sometimes even those closest to us just can't understand. If we're all in the same leaky boat ( lol) I feel like we're in good company.

The world is full of hate but here there is love. Humbled x