Macular Society
2,408 members1,142 posts

Appointment

My 8 week app was due last Tues, i have managed to get one for the 25th! i rang appointments ...then consultants sec...then a little bird told me to try the Lucentis sec at the hospital, who i didnt know existed , Thanks to him :) i shall again mention this to consultant on 25th ...but wont hold my breath ...i am joining the local Macular group next month be interesting to say the least x

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Hi jjnan

I am amazed how difficult it can sometimes be to get an appointment even though we have been in the system for months or even years. I have never heard of a lucentis secretary before. Does that mean they have an eyelea secretary or an avastin secretary as well? The mind boggles!!

Anyway, I am glad you managed to get your appointment for now. Hope all goes well for you. xx

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First i've heard of one as well.... but when they asked me if i'd like to speak to him i just said yes please lol ..i'd speak to Mickey Mouse if he could get me an app hahaha x

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My clinic has secs who arrange general appts but a separate one who schedules inj. Sorry, I hadn't thought to mention this, I was given the inj sec no. on my first visit and thought that was standard, didn't realise thats not who you were speaking to at your clinic.

Glad you got sorted x

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Not heard of a Lucentis Society either. I succeeded in getting an a appointment in the right time frame, but had to write vv strong letter to head of Trust, copies to Consultant, GP, MP, Macular Society helped too; extra clinics were arranged. V good idea to join local group too, to see how others manage. Good luck!

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Thanks fed12. Seems the way to go unfortunately . good luck with your future apps x

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Dear JJnan,

Please always ring us if you have any issues with appointment delays. We will always see how we can help.

The Macular Society helpline is open 9am – 5pm Monday to Friday on 0300 3030 111.

Alternately, you can contact us via:

help@macularsociety.org

Kind regards,

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Thank you i willxxxx

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