Sorry if this so long but I am just at a loss to know wha to do. I was toldeverytime I had my eyes monitored that if I saw any changes\distortions on the Amsler grid I had to go to A&E within 48 hours. When I asked the consultant if that meant I could no longer go on holidays she said if I knew that there was an eye hospital that I could go to. So for years we haven't had a holiday because of me.
A couple of years ago I noticed slight distortions on the Amsler grid and went to A&E and they said yes there was some distortion there that I did the right thing coming in and I should always come in if I noticed any changes. Then a few months ago I noticed that lamp posts and straight lines looked wavy and went to A&E and was told that there was nothing that could be done because I had dry ARMD. I started noticing that peoples' faces, bodies and legs looked distorted and reading text was wavy. I was told again that there was nothing that could be done because it was the dry type but I was told that there was fluid at the back of my eye and that there was a scar. I understood that scarring and distortion were a sign of the wet type. The consultant told me that my condition had stabilised and when I told her the distortion was worse she arranged for me to have a fluorescein angiogram, and said that I had probably had wet that had reverted back to dry and that was why I had a scar.
Went to the Eye Clinic to get the results and had waited over 1½ hours. One of the other out-patients said to go and tell someone. My husband found the optometrist just messing about with her 'phone and he said she acted like she had been caught out doing nothing and she said she'd see me. She found the Dr who gave me the result of the test and said I had dry ARMD which I already knew. When I asked if there was anything I could do about the distortion she said I could look out of the side of my eye and I said that everything looked wonky.
I was very upset to get a copy letter from the optometrist saying I had been complaining about the distortion – so if I see a change or worsening distortion am I not supposed to be concerned enough about it that I don't mention it? I just feel like I am being fobbed off, I rang the MDS and they said that eye units have to follow NICE guidelines about treatment.