More devasting than macular degeneration - Macular Society

Macular Society

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More devasting than macular degeneration

squinty profile image
27 Replies

Hallo friends it's Squinty, I've been a bit silent lately as out of blue from a chest infection I had a ct scan and from abnormalities on that I had further tests and have been diagnosed with stage 4 lung cancer that has spread. I have just had this news so trying to come to terms with treatment etc. My eyes are ok still having injections. 5th Eylea one on 18th. I also got PVD but that's ok. Saw my consultant privately and he said eyes ok at the moment. So you can imagine how I'm feeling🙁 Still reading all your posts though xxx

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27 Replies
gillmoseley profile image
gillmoseley

So sorry to hear your news. You know only too well how vital a good support system is following any devastating news. I hope you have family and friends in your circle to share your journey as well as online friends. All the very best!

Ayayay80 profile image
Ayayay80

Oh squinty, squinty! What can I say? How devastating it must be for you. I am so so sorry. Believe it or not - I burst out into tears when I read your post. Maybe it will give you a little comfort to know we care. I am loath to tell you to think positive as I was told by people when I had breast cancer - as if that were the answer to everything. If only it was that simple! Having said that, there are a number of different treatments available and more and more are being introduced. Much can be done these days. So hang in there, squinty.

Sending you my love and a big big hug. ayayay

squinty profile image
squinty in reply toAyayay80

Thanks darling but lung cancer no cure mine in inoperable and incurable but treatable but to what extent I don't know xxxx I'm coming to terms hugs back

angelah25 profile image
angelah25

As Squinty, I'm so sorry to hear your news. Wishing you all the best and sending big hugs xxx

sal2 profile image
sal2

So sorry to hear your news squinty. I wish you well on your journey. Best Wishes. Take care 😊 xx

Ah squinty, sending you big hugs xxx So very sorry to hear your devastating news xxx as you say, perspective is everything xxx

I hope you have a strong network of people in your life to help you deal with this blow. We are always here for you too, if you don't want to post you can always private message xxx

Nothing I can say will make it better but just know that I care and am thinking of you xxx

cormorin profile image
cormorin

Oh dear Squinty wish I had a way to make everything better for you.

Very big hug & much hope for the future, keep fighting.

Much love too.

maryparry profile image
maryparry

I am so very sorry for you to have been given this news, it makes our eye worries seem almost trivial. I have nothing to say but that you have made me feel less sorry for myself. I hope you find some strength to face whatever the future may hold.xxx

Jbenson profile image
Jbenson

I am so sorry to hear your news, It is devastating for you. Over the last two years I have been a silent participant of this community but I feel that Sqinty and Eyesright are two people that I know, you are always so kind and supportive and help myself and others keep things positive and in perspective. Please please take care of yourself and maybe let some of us support you.

Jayral profile image
Jayral in reply toJbenson

I agree totally with your post - we background members have relied on squinty and eyesright to support others - maybe we should take a leaf from their book and be a bit more proactive. Well done to them and big virtual hug to Squinty at this anxious time.

180164 profile image
180164

So sorry to hear your news. Xx

Jayral profile image
Jayral

How sorry I am to hear your news - you have always been so supportive to others on this site and hope you receive the love and support you need. X

Beldie profile image
Beldie

Dear Squinty

I'm thinking of you and thinking and thinking, and feeling useless. There's just this: live one day at a time. (Easy to say, isn't it.)

We're all here and so with a very heavy heart I send you love in abundance.

kalahuchi profile image
kalahuchi

Dear Squinty, I'm so sorry and my heart goes out to you; as if you haven't gone through enough already recently. I hope you'll still post when you get chance and I'll be thinking of you. Sending love and hugs x

JJnan profile image
JJnan

Hi Squinty ...dont give up hope...a positive attitude and good friends who make you laugh :) sending lots of good wishes and cwtches (hugs) im Welsh lol xxxx

Blessedeyes0511 profile image
Blessedeyes0511

I am so sorry squinty!!! From the bottom of my heart. I will pray for you. From what I I see from you, you are a strong person. I am so sorry. My prayers are with you.

Macular_1 profile image
Macular_1

Hi Squinty,

So sorry to hear your news.

Best wishes

Helpline

Macular Society

Oh squinty so so sorry I really don't know what else to say I always fee I should come up with some sort of wise words!! I never can. Bless your heart I am thinking of you and wrapping you in love hugs we are all with you, you are not alone remember we are your friends we love you and if that was medicine you and all of us would be cured now. So many,hugs Shannie 04xxxxxx

tallyho profile image
tallyho

Hi Squinty I have been away for a while so have just read about your news. I am so sorry to hear about your diagnosis. You are in my prayers and will pray for you and your nearest and dearest much esp as this is our church's week of prayer take care and you always know where to come when u want to let off steam and need an extra sense of support. Keep us in touch when u can

ursaw profile image
ursaw

Kind thoughts and warmest wishes. Hope you have the support of family and friends.

Georgie_M profile image
Georgie_M

Oh no! Thoughts and prayers are with you.....xxx

cwc123 profile image
cwc123

Thinking of you Squinty. You have been so lovely and supportive to those on this forum. Best wishes. We are all thinking of you. xxx

Hi Squinty, Just read about your news, I am so sorry I hope you have t he support you need at this time. I found Macmillan Cancer Care very helpful when I had breast cancer (twice). My thoughts are with you.

Teddi63 profile image
Teddi63

So very sorry squinty to read your devastating news. Yours so kind and helpful to everyone and myself on here I send you lots love at this a very worrying time xxx

cluttermonster profile image
cluttermonster

Squinty, So very, very sorry to hear your devastating news. As others have said, you are very much in our thoughts and prayers, please remember that at times of darkness. Bless you for all the support you have shown others. Please keep in touch.

Mel x

rooky17 profile image
rooky17

I've been a bit of a stranger lately too Squinty but, as many others here have already said, you are seen as a real friend so this is hard news to read. Hopefully flicking through all the messages filled with love, support and those most important hugs, will give you some comfort on the difficult days ahead. Wishing you all the strength in the world.

And another hug from me (as you can't have too many and they do make you smile!)

Lynae profile image
Lynae

Hello squinty, it's been a while for me logging in and I'm SO DEVASTATED for you!! I loved seeing your responses to everyone. What a great person you are.

I am in remission in both eyes, gone, just like that BUT now I have inoperable stag 4 Pancreatic cancer that spread to my liver. Been doing chemotherapy for 4 months now. Still have months to go. It's very scary....

Anyone else who had eyelea injections get CANCER of any kind?

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