Recently been seen on a monthly basis by rheumy he has now told me that I may not a sle, after ten years of being on hydroxy. In. That time I've lost all the peristalsis in my oesophagus , developed severe joint pains, abdo discomfort, repeated Uti's, mouth ulcers, nose bleeds, and now diabetes, had to have fairly major urology surgery etc. he wants to stop the hydroxy because my ana is normal, so I tried and within two weeks felt awful.
At a loss of what to do.