Feeling good bit have doubts: OK having problems... - LUPUS UK

LUPUS UK

32,146 members28,486 posts

Feeling good bit have doubts

letslaugh63 profile image
3 Replies

OK having problems fingers ,toes,mouth,ears,nose,numb tongue not bad intact pretty good considering last 4 months.couldn't really explain nose but if you've ever been in a sauna or the n Spain at height of heat and it burns your nostrils kinda feeling that's what I'm getting please somebody tell me I'm not going mad and there is a reasonable explanation still have punched mouth syndrome as I call itx

Written by
letslaugh63 profile image
letslaugh63
To view profiles and participate in discussions please or .
3 Replies
Thaddeus profile image
Thaddeus

simple answer to all of above -Its Lupus!

This thing will tie you in knots if you want to understand the mechanisms and connectiions, but that is the nature of the beast.

luppychick profile image
luppychick

I hope it's not lupus, who would want this diagonosis, it's is incurable, I hope it's not and it's something that can be managed something that is less unpredictable, I know people on here are trying to put your mind at rest but to predict this awfull deasease is wrong. My advice is I hope it's anything but...........this is from someone who has been to hell and back.

Luppychick x

letslaugh63 profile image
letslaugh63

Hi luppychick so do I x

Not what you're looking for?

You may also like...

Hot tub - good or bad?

Been on holiday to a 'hot tub lodge' and have spent the week since getting back feeling awful....

Feeling dreadful-no one listening

Hi, i was diagnosed with severe me.cfs five years ago and have been housebound since then. Last...

Feeling a bit lost...,

Hi guys n gals, There are so many times I would like to post but don't because because I don't...

mouth sores

Hi all Just a quick question about mouth sores which, are apparently a feature of lupus. I have...

What is feeling good?

Do we ever feel good? I constantly feel that at least some part of my body aches or I have...