Hi, i was diagnosed with severe me.cfs five years ago and have been housebound since then. Last year i was also diagnosed with fibromyalgia (not sure if i agree) and Connective Tissue disease. Ive been on hydroxychloroquine for two years but it doesnt seem to have made a difference to my symptoms.
I have a new symptom and wondered if it sounds familiar to anyone. When i overdo things - which can be as simple as a telephone call or making the dinner- i start to get a very dry mouth and lips and very dry eyes. I also have a burning, tingling mouth, tongue and gums, inside of nose, ears and eyeballs. It feels a bit like everything is burning and when i breathe through my nose the air feels freezing cold. If i open my eyes wide i can feel the air against my eyes and it feels as though im in the arctic! My nostrils feel very open as if they are so dry that i can feel the air as i breathe. I have the same burning/tingling over the whole of my body. The neuro says its all in my head and wants me to see a psychologist! But i wonder if it is a symptom of Sjogrens maybe?
I cant seem to get anyone to understand how ill i feel.