Does anyone else suffer from severe migraine, I have had them for the last five years. :)

[suzyq100]

[Sue2803]

Yes, have severe migraine, but since been on warfarin for APS (Hughes), much better

[pollyanna]

Yes, and its very rare painkillers work for me at the moment, although sometimes they do take the edge off it. I just try to stay out of bright light (my husband says I'm turning into a vampire!) Hope they ease soon, take care Mandy x

[suzyq100]

Thanks for replying guys! Glad the warfarin helps you Sue, migraines are exhausting, and no Mandy I havent found a painkiller that works yet but I am trying triptans, here's hoping!

[lucy-may]

Hi I suffer awfull migraines, usual start at the begining of a Fflare up, and any bright lights or sun shine will trigger it as well, if l am in the car without sun glasses this causes it too. They are so painfull and no pain relief tablets seem to touch it, wish l could find some pain relief x x

[Jude65]

I had migraines for years before being diagnosed with SLE. Once I had been diagnosed also with antiphospholipid syndrome (Hughes syndrome) and started on 75 mg aspirin a day and later on warfarin I never experienced a headache of any kind again.

[45Jacks]

Yes I do and my test for Hughes was negative. They have reduced since I changed my diet recently so maybe if you don't have Hughes syndrome you could consider a food intolerance. I was having 4-5 a week but now only 1 a week.

I use prescription sumatripan as a pain killer. Only effective one I've found so far.

x take care

[suzyq100]

Thank you everyone for taking the time to answer, seems Migraine is a common problem with Lupus, I will definitely think about my diet and I have an appt with the Rheumatologist coming up so I will mention Hughes syndrome to him. :)

[russell]

Yes I have SLE and APS and have suffered for years, am now taking gabapentin and they are brilliant.

[charlie007]

I have lupus,APS,primary sjorgens,and raynauds.I get migraines lasting from a day to a week and have them twice a month approx,usually with vomiting ,visual disturbance,and my balance would not be great.I got allergy tests done as a last resort and am lactose intolerent,the change in my diet has improved the the amount of times I am getting migraines.

[spencer]

My 19 year old daughter also suffers with migraines, another local gal here in the States with lupus uses Neurology Physician to obtain botox injection to relieve pain (+ insurance covers cost for injection, medically necessary)

[suzyq100]

Migraine is such a problem to control well, I am looking into my diet as we speak! I have heard of Botox and I think it works well in some cases, I hope your daughter can have some Spencer!

[debsbry]

Had hemiplegic ( one sided weakness ) migraines for years. Beta blockers help lots, get very few now.

[mcclungt5]

Since going on Topamax approx 2 years ago for Lupus migraines I have never been bothered with them again and I tried 8 different NSAID's prior to Topamax it was great to find this drug on the Lupus USA website I take 150mg daily.