I had suspected I had lupus for a long time, but the doctors kept telling me I was way off the mark. Although several members of my family have lupus they said it wasn't Hereditry. My uncle died from lupus after his kidneys failed, his 2 daughters have it, now I have a positive diagnosis and my younger male cousin has just found out he has it to.
If I hadn't took advice from a nurse who recommended I should change doctors then I think I would still be going around in circles. 6 weeks after I joined the new practice I got the results. Although deep down I knew I had lupus it was still quite a shock and found it very hard to deal with, thinking my life was over.
I know I have to adjust to having a chronic illness and it will take for me to understand what my body is telling me, but I'll get there.
The worst thing is that most people don't have a clue what it is and they look at you and say 'you look fine' but you feel like crap.
I have just started a new job which is going to push me to my limit over the next few weeks, but I don't want to start telling everyone about my lupus, the first thing people will think is that I'm going to phone in sick all the time, they made the wrong decision hiring me. I've been ok for about 3 months but I think a flare is starting. Working 10 days straight is maybe not a good idea.