Only been on drugs to cope with flares for last seven months, no 'maintenance' drugs. For last five months, slowly getting worse involvement for both legs. To start, soles of both feet felt like they were 'sore', the kind of feeling you get just before pins and needles really get goeing, can only describe this as a strange sensation. This feeling, over the past few months has spread from the soles of my feet to way above the knees. Anyone else have anything similar. Am seriously concerned about losing sensation in legs as I have already to a lesser degree in both hands. Living in the boondocks in Scotland am about to ask GP to refer to St. Thomas's as this would seem to be the centre of excellence for the country. Any experiences of St. Thomas's welcome. Urgent as seeing the GP tomorrow and intend to put MY views for the first time in this process.
Bless you all out there and thank you so very much for being there, I no longer feel alone.