I have just come across this website through google and wondered if anyone could help or give their opinion.
For the past 4 years I have been a very poorly person with no one able to pin point why certain things are happening.
I have periods of extreme tiredness, skin all over sore to touch as if flu but not flu joins ache and stiffen. I seem to get infection after infection ie abcesses both mouth and perianl and never respond to medication one episode was so bad I had emergency surgery and had to have glands removed from neck and drs gave me 24 hrs to live as airway had closed to the size of a straw thankfully Im still here.
Also sunlight I hate it cant go out when its a sunny day it makes me feel ill, I feel drained like the life has been sucked out of me and have to lay down I feel that ill, I also get a rash on my chest in a v shape within minutes of being outside red and blotches which scar. March this year I will cut the story short but I had 4 embolisms which can not be explained as I dont tick the typical box, Im waiting for genetic testing, but since the clots my right leg is 8 inches bigger than the left severe pain and swelling in the knee and calf. had a scan which confirms no DVT in leg and currently trying to find out what is causing the swelling. Constantly cold hands and feet shivers can never get warm, and Im at the end of my tether with being told Im just unlucky.
I have seen 2 dr's in the past week at our of hours who have asked me if I have Lupus or have I been screened my answer is no and they have said I should speak to GP re testing.
Just wondered from your experiences what your thoughts are and what the best way I should go about it.
Im 36 married with 3 children who I adore and life is pretty mierable as mummy is always ill and tired and want the old me back.Thanks for listening and reading, sorry for the long post too. x x