tomorrow !!!???

[larissa]

I've got a rhuemy app for tomorrow eek !

I have seen him twice, had 3 positive ANAs ! symptoms for 2 years , got fibro , and taking pics with me this time to show my red cheeks and across my nose ! I wonder what he'll say this time ! I just wanna know !!!!!????

[Purpletop]

Do you mean he hasn't yet diagnosed you despite the symptoms and blood results?? That's not good, tell him you're eager to start treatment, you've been sufficiently patient, it is time for him to get off the fence (use appropriate polite language here, of course) and prescribe it. Good luck, let us know how you get on.

[jennyhe]

Couldn`t agree more Purpletop , Larrisa go with a list of questions and concerns photos are always a good idea, you need to start treatment so stand your ground keep calm but firm hope it all goes well let us know

[copdber]

Good luck for your appointment and I agree with the others it's time to start treatment other wise maybe consider getting a new rheumy.

[Sher78]

Rheumatologists r not specialist in lupus. Please remember that it is such a hard thing 2 correctly diagnose as it mimics so many other illnessess. I am not in any way excusing him (I myself have a rheumy at the moment who argues about every symptom I have, saying it's not the lupus or anything connected with lupus but something else blah blah, despite the fact he has only been qualified 4 3 years & I have been diagnosed with lupus 4 over 18 years & all my symptoms etc r in my notes! Silly man!) If u're lucky (which I was) u'll get a really good 1 that has a lot of knowledge about lupus (the 1 I had until he retired 2 years ago specialised in lupus as his wife had it). We need more 'proper' lupus specialists that our Consultants can use as a 'Port of Call' or a lupus specialist hotline or something. Remember, ANA's etc r not a diagnosis, merely part of a diagnosis. It is possible 2 have a negative ANA even when in a huge flare, ANA's can change like the weather! I will say that they will always try 2 fob u off that they r specialists & know what they're talking about but u know u're body & u r the 1 living with all these things, not him. Just stand u're ground & if need b, tell him u r not happy with the diagnosis & wish 2 c another rheumy or an immunologist. Good luck.

[Nightjar]

I would 'demand' (tomorrow) to be referred to a Lupus Specialist (London, Birmingham, Southampton etc..) if you don't get a diagnoses tomorrow! Could you have someone with you as support? I never go to appointments on my own - as on-and-off problems with concentrating, hearing etc lupie-stuff and need someone to be 'my eyes and ears'. Good luck!