Hi: I am new to this site, discovered it today... - LUPUS UK

LUPUS UK

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PeterWoolnough profile image
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I am new to this site, discovered it today whilst on FB. I suffer with Discoid Lupus, although was treated for SL for many years as I have all the aches and pains to go with it. I was then informed that I dont have SLE, but have DLE as well as ME/CFS and Fibromyalgia. My Drs are running out of ideas how to treat me, and will be starting Thalidomide shortly. I have had Lupus and all ailments for about 16 years now, still trying to accept it though. Looking forward to chatting to all here.

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PeterWoolnough profile image
PeterWoolnough
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Tasman profile image
Tasman

Hi Peter,

welcome,...I only joined yesterday and was also guided here by fb. also have fybro and SLE with skin issues, what support is there in your area?

Tas

PeterWoolnough profile image
PeterWoolnough

I have my GP, as well as Dermatology and Rheumatology. They are there but not really helpful in day to day issues, just lucky that I have a understanding partner......

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