Hi all, I'm new to this site. I have had SLE for about 13 years have had some times were i have been very unwell and others were i have been fine. I have always found it quite hard talking about my condition to people to the point were i have not told people as i did not want to come across as a victim and go through the whole awkward look from people (the but you look so well look) I have very recently (only yesterday) plucked up the courage to tell one of my husbands cousins though i did not go in to much detail it did feel quite liberating! anyway i just felt like sharing that with you guys as i wondered if anyone else felt like this?
My next question is quite seprate it about the whole dilemma on do you have a baby or do you not? i have been fighting with this for a while but recently in the last two years (i'm lucky in that my husband does not mind either way).
I am worried about becoming ill especially when i have been flare free for a while and am scared of going through the whole illness again it like why mess up things when you are quite well at the moment... and the whole talking myself out of having a baby begins...
My consultant has spelt out the risks to me and has actually been very supportive about the whole thing but im so worried about loosing my health (it also does not help seeing my brother trying to cope with dialysis 3 times a week amongst other issues) already having kidney diease this does scare me.
And the other thing i wanted to ask if to those Lupus individuals that have had babies how did you cope with the childhood illnesses such as the chicken pox or meningitis? due to our comprimised immune systems (i have read that you can get pox again especially if you have low immunity)
Hope i did not reamble on, would appriciate some real life experiences. Thanks in advance