Thanks so much for your fantastic, enthusiastic responses last week. For all these research questions, please do feel free to comment on each other's responses as you do for other posts as getting a conversation going about all these issues is also really helpful. For information about the research this is linked to, please go to healthunlocked.com/lupusuk/... or contact MelanieSloan.
Many people have had long, difficult journeys to diagnosis and report great distress at some of the misdiagnoses, especially "in your head", hypochondria, mental health and functional disorders. We would like to highlight the impact of these misdiagnoses;
If you experienced this from a clinicians, can you please share a few words about how they made you feel? Did it change your attitude to doctors in the future? Did it change the way you could cope with the disease or the way you seek medical help for/report new symptoms?