It seems I am not alone in suffering with the non-diagnosis, which as a Newbie is comforting to know.
I landed in hospital 1.mai with numbness and no strength in legs and arms/hands. They did every test there is and decided after 3 weeks they would pass me over to a Rehabilitation centre. A whole month of gruelling strengh training and various meds they let me home but nobody knew what it was.
3 weeks all was better but then o boy, I was worse than ever with a lot of pain.
Off to a Rheumy who did bloodtests and told me my ANA was positive. Hooray I thought, finally a diagnosis. Wrong! Other tests were neg. So since then I am dutifully swallowing Cortisone and a drug called IMUREK which depresses the Immune system (used in transplants)
Now they are sending me to Neurology in an other hospital.
I must say, since starting the meds 5 weeks ago I had 2 reasonable and 2 good days.....it felt wonderful!
(By the way I am in Switzerland)
I wish you all a good evening with little pain