I am having a flare and the suns shining.

Lupus is throwing all it can at me at the moment. and the sun is shining and every one around is in a good mood. The fatigue is worse, yet I cannot sleep.Per neurophathy is giving me frezzing feet and legs, my eys are dry it goes on myalgia. Its something I have found I have to just get though. Its Lonley then one day in the near future it will be gone. That what I hold on to . what do others do when things are bad.

Ken.

[Jude65]

I feel for you Ken as having Lupus at times is so hard and such a challenge. What I do is allow myself to rest so that my body is not under more pressure. Tell people around you how you feel and what they can do to help.At the same time the mental side is important. I find my thoughts become very negative and I am thinking that all sorts of terrible things will happen. So, I find it helps to sit quietly and change my thoughts to more positive ones like

'This feeling won't last, things will get better'

Take one day at a time.

I could be much worse, lots of people are worse off (get things in perspective)

I am not alone, others with lupus or other chronic conditions have to live and cope with feeling unwell.

Think what you can do, not what you can't do'.

Finally make a list of blessings in your life.

I wonder if it is more difficult for a man. Do you feel that you have to always be strong?

Sending you my best thoughts and wishes

Judith

[Hidden]

Thanks Jude65 I do not usually write when things are bad, but lately its got much worse, Also I have primary Lymphoedema which for a man is pretty rare, What makes that worse is that I am having to fight to get treatment. But this yes I do take it one day at a time, what no one is saying and i believe they should is that Lupus has wrecked their lives, it has mine. I almost lost my wife because of it. The social side of every day living just dried up manly due to fatigue. enough of me going on . Thanks for writting to me and please forgive the spelling .Like everything its all down hill till its up.I will write more sence soon.

Ken.

[hels]

awww ken i feel same im in agony today really feel sorry for myself im sick of it been hospital and they fob u away im so lucky i have support from my partner hes the only one but i feel i drive him mad i really hope u feel better soon x

[Hidden]

I will fell better sooner or later but I nearly replyed to your pos at 1.57am . I cannot get a good nights sleep. Troubel is on to of this I have got Lymphoedema in my right leg and my left leg needs a knee replacement. so when Lupus goes into overdrive life is crap . However its better than throwing in the towel. I live in a lovely part of Norfolk after moving from Peckham 5 years ago so I have not got the great doctors, in fact there not that good but the peace and quite compensates.But if it was not for my wife i do not know where I would be.

Thanks for calling by, well be better soon.

Ken