I dont know much about sle, my doctor said keep out of the sun and take plaquenil and steroids, and come back in 3 months time!! That was it, i feel left out on a limb, have a few flare ups which i didnt understand, though i do now. It has also affected my kidneys. The worst is the fatigue i used to be so full of life and energy but now my energy has gone, is it always like this?It seems the docs arent that bothered really give you a prescription then byeee for some time. I like this site as we are all in the same boat, i thought i was the only one, of course thats daft, but i do feel cut of and in a place where i dont really understand. Is this just me, my hubby seems to think im daft! Why are you so tired says he!! I try to explain but like talking to a brick wall. Well thats my moans over for now, thank you all.