Dont you just love GP`s ? Took my 15 year old ..recently diagnosed with Lupus for an emergency appt yesterday , so didn`t see our usual Dr, Ellie is having hellish trouble with joint pain & lethargy, (been referred to Childrens Hospital in Newcastle Upon Tyne.. from the Rheumatology dept at Middlesborough..due to high white cell count ?!? ) Anyway this GP ,last night said she MUST get out of bed & ensure she goes to school in the mornings as `lying in bed all day really wont help` I asked how any people with Lupus had she ever met...no reply. Left before I really lost it.
So we await a `emergency ` appt to Newcastle. Sorry not a question as such I know just had to `bawl` to someone...she now feels even guiltier than she allready did about missing so much school...who incidenally have been superb. Any other younger sufferers with any advice?