New Member!: Just stumbled on this website. I am... - LUPUS UK

LUPUS UK

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New Member!

muchoka profile image
8 Replies

Just stumbled on this website. I am new. I was diagnosed 10 years ago. By the time I was diagnosed, Lupus had attacked on of my lungs, creating Fibrosis. On top I have Asthma. I am coughing everyday. Life is not to bad except one has moments of depression which comes as a package. I am currently on Aziathioprine, Hydroxchoroquine, Prednisolone plus meds that are treating the symptoms of those above.

I wonder whether there is someone out there who can let me know how they cope with the nuisance of oral thrush?

I am a teacher and had been coping with full time work. As the work load increased my symptoms worsened so I left. My family are very supportive. I hope that writing a blog will help me cope better.

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muchoka profile image
muchoka
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8 Replies

Hi welcome Know that one Nystatin really helps keep the oral thrust away clean teeth 3 times aday not working but welcome all the best

muchoka profile image
muchoka in reply to

Thanx for the warm welcome and the advice. I do get Oral Nystatin on my repeat prescription. I will need to brush my teeth more often during the day.

janiceray profile image
janiceray

Having probs at the moment with ulcers that have been around now for 3 weeks going back to doc soon.but could it be from all the Meds we take? any way welcome to the site.

We all have to pace our self s as much a possible ,could you go part time!!

muchoka profile image
muchoka

Hi, thanks for the warm welcome. Am sorry about your ulcers. It's an ongoing battle. You can get oral nystatin to help. I usually use Oraldine as well. I resigned April 2011 as was suffering from un diagnosed diabetes symptoms. Had a 2nd breakdown sept 2010. Couldn't cope. Returned on a phased return and my boss through me into full work in January 2011. As if that was enough she put me on a capability procedure. I was told I ve been off sick for a long time and the students were suffering. After a meeting with my union rep, I was given targets to achieve. With backing from my GP and family, I decided to resign. A couple of weeks later I was diagnosed with diabetes 2.

Any how, spent the rest of the year controlling my diabetes and juggling with Lupus and Asthma. I have just started supply teaching where I can have control. I have decided to do only 2 days a week and then relax. All the best. Hope you can get the ulcers sorted.

rollie profile image
rollie

Hi Muchoka, I'm new too.

I have asthma and sometimes develop oral thrush from using the steroid inhaler (Clenil Modulite). To prevent it, I use a spacer (Volumatic) and gargle with water after taking a puff.

Hope this helps.

muchoka profile image
muchoka

Hi Rollie,

Thanks I do use a volumiser. I do take Flixotide steroids 500micro. On top I take Prednosolone for lupus 7.5mg. It's a lot of steroids.I do usually brush my teeth and guggle with Oraldine. I guess it's one of those nuisance annoying problems that I have to learn to leave with.

Smiler1 profile image
Smiler1

Welcome :0),

might be worth your while looking into the 'Candidia Albicans' 'diet'- basically best to cut out/avoid sugar, wheat breads etc etc. I had 90% CA in my body a few yrs ago, went on herbalist 'diet' & was the best I've ever felt in my life!

Good luck, healing thoughts to you (& try to cut out/avoid all stress ;0)

muchoka profile image
muchoka

Thanks Smiler1. Will try that as well. Have cut out sugar due to diabetes 2. Will try cutting out wheat bread. What options do I have instead of wheat bread? :0)

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