So I’m sure alot of you have suffered hair loss through your journey like me. Mine has been on and off for about 20 years now, to differing degrees but has really got me down lately.
It’s been attributed at times to low iron, different medications and I know can be an auto immune disease issue in itself, stress and high levels of inflammation.
Usually when I have a bad phase of loss it does eventually calm down and then I wait for the re growth to start but something odd has now happened, about a year ago I had a huge re growth phase but that hair is coarse, wavy and completely different to my previous hair which was fine and straight, all my previous hair is disappearing now and I just have all this coarse hair left of varying lengths, it’s a complete mess of thinning hair left of different lengths.
I would be really interested to see if this has happened to anyone else and if they have been given an explanation. My ferritin levels are just above what they can be for an iron infusion, when I’ve had iron infusions previously they have really helped. I also have celiac so don’t absorb iron frustratingly.
I know worse things happen but when you’re battling health issues and all the associated problems it’s just something else and it’s really affecting my confidence and getting me down now.
Thanks all x
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Galaxy2
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on top of everything else it’s a psychological kick isn’t it, I do empathise. I always had hair envy anyway because mine was so fine but now it’s fine, thinning and feels and looks like candy floss - the texture causes so me much aggravation because it knots and gets matted so easily. I’ve got less hair but it takes so much more time to manage than it does for family and friends with luxurious manes! I suspect age and menopause brought its own changes. I would highly recommend seeing a trichologist if you can, I avoided due to cost for years but so wish I’d gone earlier. Can’t do much about texture but I certainly feel better about losing the obvious bald spots. I learned from the trichologist that blood tests might come back ‘within normal range’ for general health but could be too low for hair health. Sending love x
Thank you, you’re so right, it’s really gets you down. I’ll look into that and go and see my Gp again, it would be a cost issue for me too unfortunately but would be so good to find a medical professional who understands what to do to help . Thank you
I have had thinning hair on and off as well as my daughter. Stress, medication and autoimmune immune plus any procedure requiring anesthesia is all a factor. I have heard that some who are on cancer medication which many autoimmune patients are, can totally change your hair texture.
Thank you, yes it’s odd as I was on mycophenlolate and then rituximab for many years, although I had hair loss it’s only recently I’ve had this different texture.
Hi there. I can totally relate and i am going through hair loss just now too. I have had Psoriatic Arthritis and SLE since i was an early teen and i am now 41 years old. I have lost mine several times over the years. The first time was due to stress, psoriasis covering my scalp which led to it coming out when doing my treatment. Since then it has been due to Alopecia and also when i have a bad flare i can lose it then too. I have the most beautiful wig but it never feels right when wearing it and i always feel as if people are staring which i'm pretty sure their not. It does get me down too and make me so self conscience. I'm really lucky to have a supportive husband, family and friends which helps me but yeah it is so hard to keep smiling. You are not alone and i hope it improves soon for you. Take care. X
I do feel for you , I’ve always thought I would have a wig if I need to but can imagine I’d feel the same. I’m sure so many have said it, but I’m sure no one is staring and if they are they are probably thinking what lovely hair. I find myself looking at others lovely hair wishing mine was anything like theirs and they probably wonder what I’m looking at too. X
I too have had hair loss. It was going thin on top but so too did my two younger sister much earlier than mine did. Then I fell down the stairs and fractured my skull. I lost my sense of taste and smell, and the hair loss got worse when I was in hospital for 6 weeks. I know all my meds can cause hair loss and I have Lupus which is another feature of the hair loss. It has started growing back a little bit but I have the opposite of you. I have natural ginger hair and it was very course if you ran your finger and thumb over an individual strand. Now it is fine and smooth. A few weeks ago a single hair was sitting on my shoulder and I ran my finger and thumb down it and it was course in places! I was so excited! I take biotin tablets and have done for about a year. I don’t know if it helps but my GP says it won’t harm. I have curly hair and at 68 years old it is still ginger. I understand what you mean about losing confidence though because mine is still thin on top and I often think people are laughing or staring. I can never do my hair nicely to go out for a special event it just does it’s own thing , and I feel, never looks nice.
Ah, thank you, strange isn’t what our bodies do, I wonder if it’s a reaction to medication, inflammation or nutrition issues. No rhyme or reason to it sometimes .
I’m the same , what I have left never looks good , I just tye it back and have all these wispy bits sticking out. Used to have such lovely long hair too , it’s does get you down
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HAIR LOSS
Extreme Hair Loss 
Hair loss 
Gradual but significant hair loss/thinning with SLE, any help or advice would be amazing! 
hair loss
