Spot Hugo......: Here is Hugo sussing out the rare... - LUPUS UK

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Spot Hugo......

Spanielmadlady profile image
11 Replies

Here is Hugo sussing out the rare occurrence of more than 6 flakes of snow in coastal Cumbria. Thank you to everyone for your messages of support , recovery wishes and listening my pain rant. I appreciate you all despite what Lupus puts us through you are all fab xx

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Spanielmadlady profile image
Spanielmadlady
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11 Replies
RosieA profile image
RosieA

No missing him! Fabulous outfit. So sorry, I've been struggling badly and seem to have missed what has been going on with you but very pleased that you have had the treatment you needed and are on the mend. xx

Spanielmadlady profile image
Spanielmadlady in reply toRosieA

Marley had a green one and in grassy areas i couldnt see him.Yes I know you have hun. Are you getting on any better with the aza ? X

RosieA profile image
RosieA in reply toSpanielmadlady

Ah, a bit like the character in Winnie the Witch who lived in a black and white house but then had a black cat! Sadly, started to vomit (hadn't vomited in 17 years). Now off it and told to rest the tummy for a couple of weeks but am in a right mess. Chest pain, high abdominal pain, look like death warmed up but just managed to get a hospital appointment for tomorrow. They mentioned pancreatitis (I know AZA can cause this) It's getting overwhelming. I am exceedingly lucky in the care in my area but really would like to conquer this beast, just a little. How's the leg? Are you home?x

Spanielmadlady profile image
Spanielmadlady in reply toRosieA

I found it vicious and was pleased I switched to the mmf.The ankle is extremely painful. 60 mgs of codeine and 10 ml of oramorph still havent totally eased the pain.More needed to be done then expected as the torn ligament had got stuck in the ankle joint so the joint has had to be cleaned out before the ligament could be reattached using titanium anchors.in plaster non weight bearing now for 6 weeks . Still in waiting for ots to come physio have finally been and given me a zimmer frame to hop around with. I could do with going home today for hu as mat goes back to work tomorrow . Someone is coming to walk him but won't be able to get in x .

RosieA profile image
RosieA in reply toSpanielmadlady

Ouch! What dramatic surgery, was this Lupus related? Fingers crossed you manage to get home soon. Are you able to live without going up and down stairs? Is there a neighbour or safe place to leave keys? It's a worry with dogs, I've had to rush arrangements for tomorrow - dog walker and villagers.

I will mention mmf as I am reluctant to try AZA again. I pass out when I am going to be sick and sometimes I don't get enough warning to get down on the floor. Hell on earth but so need relief from this chest and abdominal pain. x

Spanielmadlady profile image
Spanielmadlady in reply toRosieA

No I fell looking after mum in Dec 2023 and snapped the ligament ex cept for a few fibres . Had to do physio and steroid injections first but subsequent falls finished it off completely. I also torn the peroneal tendon last summer. He said if he could see he would repair it if not it will mean a 2nd op. I'm saying no to Lupus related but steroids can affect ligaments and tendons. I've turned my front room downstairs into a bedroom but my stairs are steep in a 150 yr old house.thats what I'm waiting on the ots for...a Commode. There is a key safe in the yard but the gate is swollen with all the damp. It's more that mat goes out to work early and is out for 13 hrs. .I hope your consultant will consider mmffor you as clearly aza isn't suitable xx

RosieA profile image
RosieA in reply toSpanielmadlady

Do let us know when you're home safe and sound. Hugo will be beside himself to see you. Nothing like a furry hugs to start the healing process. xx

Spanielmadlady profile image
Spanielmadlady in reply toRosieA

Be interesting to see what he makes of walking frame and cast 🤔 x

bookish profile image
bookish

What a gorgeous and happy chap he looks! xx

Spanielmadlady profile image
Spanielmadlady in reply tobookish

He is a real character x

honeybug profile image
honeybug

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