national centres of excellence

[Jrob14]

Hi are there are national centres of excellence for the treatment of SLE, or does anyone know of a good private dr offering support in this area.

Is Rheumatology the best discipline to be under?

husband currently going through assessment and though the NHS has been excellent and very quick, we are not too happy with our allocated consultant Rheumatologist

Thanks

[Krazykat26]

If you contact Lupus UK they will be able to direct you towards a centre of excellence near your area hopefully. The number is 01708 731251

[addai]

Proff. D. D'Cruz, Guy's and St.Thomas Hospital, they deal with both private and NHS. They are based in London, Westminster Bridge.

[Lizzo32]

Is this NHS consultant rheumatologist a generalist OR a lupus specialist. There’s a huge difference. Private vs NHS makes no difference to care quality!

[addai in reply to Lizzo32]

They specialise in the treatment of Lupus, and treat plenty of overseas patients.

[ExpatRay]

My wife has used the London Lupus center with great effect...Professor Edwards and Dr Kaul were particularily helpful and knowledgable as regards Lupus......they are also open to video conferencing consultations

[Betsybunny]

Hello, I travel 2.5 hours to Bath as they are a centre of excellence for Lupus and Sjogrens. I have lots of other AI issues going on too including fibro abd unfortunately over the years my most frustrating experience is that no one place treats everything and the different hospitals or even departments never 'speak' to each other. Take care x

[Lizzo32 in reply to Betsybunny]

A wonderfully perceptive and highly observant post:

“no one place treats everything and the different hospitals or even departments never 'speak' to each other…”☝️👏👍

Hence frustration persists for many sadly.

If only we sufferers did not have to hunt around and travel for someone excellent? SAD.

[Walkinglondon]

London Bridge Hospital Lupus Centre. It is private (although most doctors also work in NHS). They are all excelkent.

[catandmeringue]

UCLH in London Professor Isenberg doesn't do private but some of his colleagues do.

[baba]

Centres of excellence

lupusuk.org.uk/lupus-uk-cen...

[triptons]

Mile End hospital

[Chantev]

My rheumatologist unfortunately has now retired. My lupus has now been quiescent for the past two years. Have been under his care for the past thirty years. He was based at Charing Cross Hospital, Prof McWorth - Young and specialised in immune system diseases and arthritis. I think he has a private clinic in London.