Is this normal? Floored by fatigue following (unconnected) emergency surgery - worrying re Work / Life with autoimmune disease

[Mumpet11]

Hello all

I have Sjogrens (diagnosed by lip biopsy) and take 300mg hydroxychloroquine.

I unfortunately had to have emergency surgery for ovarian torsion 10 days ago. Pain-wise doing really well (I’ve had 2 other endometriosis surgeries in the last 6 years and this one pain wise isn’t too bad).

Last week my energy levels were ok and I wasn’t really napping. This week, I am suddenly floored and in and out of sleep most of the day. My arms feel as heavy as rocks and when lying in bed I genuinely have to remind myself that I can move to convince myself to urinate. A lymph node under my chin is very sore and raised since Monday.

I tried yesterday to get out on a short walk and then make dinner with rest in between but have woken this morning feeling like I cannot move.

I have a very stressful job as a lawyer in the city (working 14 hour days on the regular) and we are in the process of a house purchase, wherein we are reliant on my wage and all the hours and stress that goes along with that.

Every time I’m unwell like this, I wonder how long it will last, will this be my life, can I do my job and other derailing thoughts.

If anyone has any positive stories to normalise how my body is responding to the surgery or otherwise any suggestions to pull myself out of this, I’d really appreciate it!

[Tiggywoos]

Eekk mumpet you won’t want to hear this probably but surgery only 10 days ago is bound to floor to you . Also had many surgeries for endo and I used to find I got a rush of adrenaline in first week post surgery then crashed . A bit off piste I know but any possibility you could be anemic ? When did B12 and ferritin and D3 last get checked ?

You do incredibly well holding down a job and isn’t house moving meant to be as stressful as death and divorce 🤦‍♀️. Dare I ask if you’ve got a follow up post op ? I used to get post anesthetic blues but it did pass.

I think you need to cut yourself some slack hun . Managing an autoimmune disease is a job in itself throw in surgery and a house move and bam 💥 you’re gonna feel whacked. Try not to push it If you possibly can. Rubbish cliche but sometimes relevant ..take each day as it comes 😘 xx

ps could you send pic of lymph node to GP .. I know sjogrens can cause raised ones but wouldn’t hurt to get it checked out