Anyone take Saphnelo infusions? Would love to hea... - LUPUS UK

LUPUS UK

32,179 members28,518 posts

Anyone take Saphnelo infusions? Would love to hear feedback...

amberb444 profile image
1 Reply

Going to try the Saphnelo infusions.... has anyone had experience with this? Similar to Benlysta but not as much research out yet... thanks.

Written by
amberb444 profile image
amberb444
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Leslieprays profile image
Leslieprays

I just started my infusions. I have discoid rashes over 60% of my body, including my face. Nothing has cleared my skin. After one infusion, I noticed immediate changes, and in a week my face was cleared. I did have a small (very small - 3 pinpoint leisions) shingles outbreak - which is a side effect. I’ve had both shingles vaccination shots now, and completed my second infusion a week ago Friday.

Other than the tiny shingles, I haven’t had any side effects.

I hope it works as well for you!!

Not what you're looking for?

You may also like...

Starting cellcept (mycophenolate mofetil) , I would love to hear your experience with this.

Do you take it with or without food? Any side effects? If you experience nausea, how long does it...
Cherylv profile image

Has anyone found love after Lupus?

I am feeling a little disheartened today after my ex flew back from NZ to take me away for 3 weeks...
helsnz34 profile image

Zopiclone - to take or not to take?

Quick question. My sleep has been atrocious for months, and now is so poor that I get about 2 hours...
whisperit profile image

Infections doctors conflicting and would love some advice

Hi everyone I haven't write a blog before but often read all others for support and advice. I'm...
Zoezoe752 profile image

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.