thank you for the help! ❤️: I recently posted... - LUPUS UK

LUPUS UK

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thank you for the help! ❤️

Loobie72 profile image
3 Replies

I recently posted asking if anyone had pancreatitis issues with lupus (just been diagnosed with cutaneous lupus) and I got some advise & help & support. I spoke to the hepatobillary clinic who removed my gallbladder & they agree it’s most likely the pancreatitis is being caused by an autoimmune issue that’s not showing up on tests, I asked them to recommend to my gp I get sent back to rheumatology and I had a specific guy in mind (recommended by the maxfax consultant I’m under for mucus membrane pemphigoid) so I’ve emailed the gp asking for a referral and that’s all going to be set in motion.

so a heartfelt thanks to you all. I feel like I’m finally getting somewhere! 🥰❤️

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Loobie72
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lupime profile image
lupime

This is such a helpful forum. I am so glad that people were able to offer you some help. Thank you for letting us know.

nottypical profile image
nottypical

Hello Loobie.

Missed yesterdays post but wanted to say that following my lupus diagnosis Addenbrookes ran numerous tests & I'm on Creon due to a "half white" pancreas. I'm certain this happened a long time before lupus (which I now think was triggered by intense UV during a Disneyworld holiday) - the children (veggies) weren't surprised & blamed it on excessive burgerish diet.

Loobie72 profile image
Loobie72 in reply tonottypical

Oh damn! That doesn’t sound fun at all 😕 is the Creon helping?

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