Scalp inflammation: Really struggling to keep... - LUPUS UK

LUPUS UK

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Scalp inflammation

Quuen profile image
3 Replies

Really struggling to keep inflammation down in the scalp and it is now causing severe hair loss. Dermy has been extremely unhelpful so now I'm on my own mission to try and help reduce inflammation and scarring so it can grow back 🥺 any tips and tricks would be appreciated. TIA!

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Quuen profile image
Quuen
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3 Replies
Beryl2485 profile image
Beryl2485

hello Quuen,

I have also been affected by hair loss through lupus in my scalp. Have you tried dermovate scalp application? As that worked really for me.

I hope this helps.

Betty909090 profile image
Betty909090

Hi,

Sorry to tell you this but autoimmune alopecia is probably what you’ve got! 😱

There’s actually NO cure only treatment!

As @Beryl2485 says dermovate scalp application may help damp down the scalp redness,itchiness and inflammation !👍👏

I’ve had autoimmune alopecia very badly about five years ago and my hair plus flaky scalp skin dropped out in clumps!

Watched a load of nonsense and BS on YouTube about hair growth creams, lotions etc etc and expensive transplants etc. Incredible!😢🤪

Refused to buy all this expensive fakery!

Tried to understand the pathology of autoimmune alopecia: basically your T lymphocytes (white blood cells) are attacking and destroying your hair follicles hence hair weakens, thins and falls out!

I didn’t want to wear a wig so I shaved my head, wore a hat, optimised my lupus medication, de-stressed myself paid attention to vitamins, minerals, diet intake etc and guess what?👍👆

It grew back not strongly at first but I find it ok now albeit with a few bald patches! 😉🥰

MrsMarigold profile image
MrsMarigold

Hi Quuen, it’s a scary time to be so young and experience hairloss. I was in my late 20s when mine started. I’m in my 60s now and I do not have the thick hair I used to have. But, time moves on and you will find the tricks that work for you. The Women’s Hairloss Project is a website I highly recommend. You will find so much information and empathy. Lupus does affect our hair follicles. I have no leg hair or underarm. I’m grateful I don’t shave! I also have found some great hairpieces that my Salon gal styled. Unless I tell someone they have no clue I’m wearing hair. Wearing hair is so trendy here in the States, please just be kind to yourself; look up that forum for encouragement. Also, check your meds. Some accelerate hairloss. All will be well. 🌼MM

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