Hope you’re all as well as possible and enjoyed Easter!
I’m diagnosed SLE 3.5 years now, before my diagnosis I didn’t realise until a friend pointed it out to me, that I had no arm hair, then I noticed my leg hair had gone too, it’s never grew back I have total hair loss on my arms and legs, their very smooth, nothing grows from them. I never mentioned this to my rheumy or GP as I didn’t think it was related or a big deal, its less work for me 😂. Anyway, fast forward to now, I’ve started getting quite sever thinning of the hair in my head, it’s very noticeable it’s on my crown, towards the back and top side of my head. I also get a very sore painful scalp in this area, feels bruised/tender sometimes it burns, stabbing pains, also a strange itch sensation. There is absolutely nothing to see on my scalp, no sores, redness, scabs, spots or dandruff, nothing 🤔. It’s uncomfortable and the hair loss is starting to really upset me and have an impact on my self worth and confidence. I’m wondering if this is something I should wait to bring up at my next rheumy appointment (should be due one in May) or get a GP appointment for it? Does it sound lupus like? I’m worried in case all my hair goes the same way as my arms n legs as it’s never come back😮. Yet, I don’t want to bother the GP in a pandemic with something they may feel is trivial 🙁.
I’d really appreciate you’re advice/input on the situation. Any advice on how to get rid of the pain in that area, I’ve already tried a sensitive scalp shampoo and conditioner.
Btw I always wear a uv 50 cap 🧢 when out in the sun/heat.
Thank you 😊
I may try and post a photo so you can see.