Alone in Wales

[Aloneinwales]

Can anyone help me access Lupus support in South Wales ? I feel very isolated with my diagnosis after many tests scans and appointments over the past 12 months Some days I am so tired and in pain in all my muscles I cannot get out of bed to the toilet I have lost weight as eating makes me feel nauseous Yesterday my long awaited appointment with a Rheumatologist left me feeling dismissed told to come back in 6 months and even more blood tests Any recommendations would be most welcome I would willingly travel or pay to see someone privately if they offered an understanding of this condition

[HazelW]

Call Lupus UK Head Office - 01708731251 - the staff are very helpful & will put you in touch with someone.

[Aloneinwales in reply to HazelW]

Thankyou for getting back to me I will call tomorrow

[Kevin53]

Follow Hazel’s advice and LUPUS UK will put you in touch with the local support group. Best wishes Kevin

[Aloneinwales in reply to Kevin53]

Cheers for your support

[Dalilatm]

Hi, I’m sorry to hear that you’re feeling unwell at the moment. Lupus and symptoms can make us feel very isolated at times, and that no one understands what we’re going through.

I run the lupus support group in Cardiff,

Contact details: dewis.wales/ResourceDirecto...

And Wendy Diment runs the group in Pembrokeshire.

Contact details: dewis.wales/ResourceDirecto...

We both have regular online and in-person meetings.

Get in touch with us, it can be a tough condition but it doesn’t have to be lived in isolation. Here’s also Lupus UK’s contact details: lupusuk.org.uk/contact-us/

Dalila

[Aloneinwales in reply to Dalilatm]

Thankyou for such a swift reply it really made my day better

[Poshcards]

Hi, I am same, my local lupus group is either 1 1/2 hours away or in the middle of a huge city, so I have nobody either, but do have a wonderful consultant when I get to see her x

[Walkinglondon]

Lupus UK website, very helpfull.

Lupus excellence centre in Bath or further afield Lupus Centre London Bridge Hospital (private). They are very good!