covid: Hi I have Lupus plus another couple of... - LUPUS UK

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Tregarron profile image
29 Replies

Hi

I have Lupus plus another couple of auto immune disorders. My question is to anyone who has had Covid. I’m on my 14th day positive. How long has anyone else tested positive for.

Thankyou

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Tregarron profile image
Tregarron
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29 Replies
PMRpro profile image
PMRpro

Patients who are immunosuppressed tend not to clear the virus as quickly as others who are otherwise healthy - so they test positive for longer. And you may test posiitive because of leftover bits of dead virus in your upper respiratory system.

Tregarron profile image
Tregarron in reply to PMRpro

Thank you for taking the time to respond to me. I wasn’t aware of that. I will continue to isolate as I have a family member on immunosuppressants and hopefully get a negative result soon.

Seaquin profile image
Seaquin

12 for me. It was longer than any of my peers. I didn't seek any medical advice as I felt good. I put it down to the action of my immunosuppressants

Tregarron profile image
Tregarron in reply to Seaquin

Thanks for your reply The few people I know that have had it were positive for 5 days. I’m crossing my fingers for a negative result.

Catkin-blake profile image
Catkin-blake

It was 8 days for me and my husband cleared in 7 so it was only 1 day longer for me. Actually went to a very faint line by day 6

Tregarron profile image
Tregarron in reply to Catkin-blake

Thank you for reply my husband took 12 days. I’m hoping mine will clear soon.

Star13 profile image
Star13

I was 18 days although I was feeling better by 14. It took 2 months to compleatly get over it as the cough was slow to clear even with antibiotics and steroids . Hope yours clears soon.

Tregarron profile image
Tregarron in reply to Star13

Hi Star 13

I’m glad you’re finally over yours. It’s horrible isn’t it. I got a negative today. It makes you feel so drained doesn’t it.

Best wishes

milkwoman profile image
milkwoman

I tested positive for 14 days and most likely had covid for a couple of days prior to my first positive test. My husband (who does not have any AI disorders) tested negative much earlier than I.

Tregarron profile image
Tregarron in reply to milkwoman

Hi

Same as you 14 days tested negative today. My husband the same. Hope you are over it now

milkwoman profile image
milkwoman in reply to Tregarron

This was back in March. Having Covid affected my already wonky digestive system. Haven’t been the same since. Still haven’t gotten my appetite back. I hope you have a full recovery!

Tregarron profile image
Tregarron in reply to milkwoman

Thank you. I hope you soon see some improvement.

Best wishes

Tykle profile image
Tykle

It was fifteen days for me, not on immunosuppressants.

Tregarron profile image
Tregarron in reply to Tykle

Hope you have fully recovered now.

Tykle profile image
Tykle in reply to Tregarron

Yes thanks. It was like 'proper' 'flu, taking a few weeks to get back to normal. I hope you're feeling better now.

Tregarron profile image
Tregarron in reply to Tykle

Hi Tykle

Every bit of me hurts although I feel much better. I feel tired and find I am having to pace myself. I think like you it will take a while to get back to normal.

Tykle profile image
Tykle in reply to Tregarron

Pacing yourself is the best thing. I hope you will soon be back to normal. Take care of yourself.

Sevpuri profile image
Sevpuri

Hi, yes last year I had covid and it was positive more tgen 14days it's called long covid , because of lupus takes long time to recover

Tregarron profile image
Tregarron in reply to Sevpuri

How are you feeling now?

Sevpuri profile image
Sevpuri in reply to Tregarron

After that always something problem last 2 month suffering a lot coughing bleed counts ate low still not diagnose why ? Been A&E 4 time, today done lots of blood tests, let's see what they are doing further treatment. Hope you feeling better. Thank you.xx

Tregarron profile image
Tregarron in reply to Sevpuri

That’s so awful for you. I do hope they come up with some answers for you.

Take care

Sevpuri profile image
Sevpuri in reply to Tregarron

Thank you

Betty909090 profile image
Betty909090

Note that LFTs (lateral flow tests) and RATs (rapid antigen tests as often called in the US) for COVID are not perfect!

One can still remain infectious despite having a negative result as one doc explained!

If previously positive and now negative the nasal swab may not be picking up enough viruses/virus particles in the nostrils to give a positive result.

The tests are not sensitive enough to do so.

As Dr Jeremy Rossman says “these self administered tests are NOT sensitive enough to pick up low amounts/low loads of covid virus in the nose hence one could still be infectious to others” through coughing, sneezing, talking etc at others!

Hence for the immunosuppressed through medication eg MMF one must still be careful and shield from those who vehemently assert their covid negativity!🧐

There’s also the problem with false negatives!

Take care!

Tregarron profile image
Tregarron in reply to Betty909090

Thank you for the information you have given me.

Best wishes

BK47 profile image
BK47

That seems quite long but not exceptional. 12 days is not unusual. Try not to worry too much, get lots of rest and plenty of fluids. Obviously if it doesn’t clear soon get in touch with your doctor! COVID is a strange illness. It seems to affect different people in different ways. Get well soon 🌸

Tregarron profile image
Tregarron in reply to BK47

Hi

Finally got a negative on day 15. Just got the after effects now. Joint pain and headaches. Saw the GP who said it is definately COVID triggered not helped my AI issues.

Thank you for your reply.

Best wishes

Gizmo6 profile image
Gizmo6

Hi I had covid in April it was 6 days positive faint line on 7th day negative on 8th. This was my first with covid. I'm a support worker I worked with covid service users in the first year of covid lockdown uk , I never caught it. I've got covid again. I checked when ours friends warned us they had covid. I checked as I felt symptoms. From day one of testing I had a faint line I'm on day 7 still with faint line. I'm isolating as I have elderly relative in a nursing home. I feel so guilty as I can't visit her. Hope I get a negative soon. I still feel ill with it. Hope you get your negative soon 14 days seems like a long time to still be positive.

Tregarron profile image
Tregarron in reply to Gizmo6

Hi Gizmo

I finally got a negative on day 15. I hope you get better soon. Don’t feel guilty it cannot be helped.

Take care

oznaf profile image
oznaf

I tested positive for 13 days and felt better….still no taste or smell now for 13 months…71 years old and not on meds…..take care of yourself….

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