Hi there - just to run this past everyone - I have just recovered from Covid which has left me with either Covid tongue or oral thrush - not sure which yet - but the gel I have been given to cure the thrush doesn't seem to be doing any good so assume it is Covid tongue which can happen with Lupus patients and Covid infection.
I bought some live yoghurt to use in my mouth as I had heard this was good to put the balance/flora of the mouth back to normal. I have never liked natural yoghurt but had this huge pot to use up so had some on some fruit and quite enjoyed it - I was therefore using it every day to finish the carton.
A day later I had terrible joint pains - my wrists and thumbs were almost rendered unusable - I eventually worked out that the joint pain was my over active immune system not liking these 'bugs' whether they are supposedly good for the gut or not. I had forgotten that about 10 years ago my Lupus consultant told me off for taking drinks like Yakult which was live bio as he said he could see by my blood tests that my immune system was going crazy trying to kill them off. I thought I would let people know this because if you do use these products it might be worth considering that some of your joint pains could be as a result of your over active immune system being unhappy. As soon as I stopped with the yoghurt my pains went - thank goodness !
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Just wanted to say that I had the same experience after taking a live yoghurt drink - felt really unwell, joints ached, weak as water for about 24-48 hours. Then everything reverted to normal, in fact better than normal for a few days. Have not tried live yoghurts since then. Interesting to know that your consultant had warned you about taking Yakult etc. I had never heard anyone mention this as something to avoid as a lupus patient.
Thanks for flagging it up for everyone.
Trust your tongue will heal up soon.
Gemim
Hello there - glad this might have helped others - my aim in life is to share so people don't have to suffer as I may have done along the line of this rather complex illness. I also have the same problem with blue cheese.
My pain was so bad that I thought I must tell others because it might be that the joint pains people are experiencing could be something as simple as that. I was in agony and had to go to my GP - then I had a lightbulb moment - I wonder ? stopped taking it and joints returned to normal. Tongue is difficult - the yoghurt did help - but at what cost? So back to using the gel but very difficult to shift. Apparently Covid hits the ACE receptors and there are a lot of them in the tongue hence why I have a problem. Thank you for your good wishes.
Hi Just wanted to ask - where you say...
Then everything reverted to normal, in fact better than normal for a few days.
Do you mean when you stopped taking it?
Thanks
A
Yes, I only took the one little bottle. That was quite enough! Sorry that I didn’t make that clear.
Gemim
Agh - thanks - same as me - you can also have the same problem with drugs and vitamins and minerals - I found I often experienced dreadful joint pains and realised what I was taking my body didn't want it - or more importantly the pathway to metabolise it was somewhat broken. Hence I ended up with bottles of unused supplements etc. - expensive being ill ?
Yes, I also have lots of bottles of unused supplements in the cupboard. The advertising is so convincing and when you are struggling there is the temptation to try anything and everything. We learn the hard way!