chilblains

[0105luppyabby]

I get Raynaurds and together with lupus my hands get really raw and saw like chilblains. I was advised to use cetreben handcream and take a piriton. Anyone else tried piriton?

[pattypatchwork]

Hi, I also have reynauds and lupus/sogjens and I get small blister like lesions on my fingers ( to start with and now on my feet) and I was initially told they were chilblains (in summer!) I had one of them biopsied and it turned put to be caused by my immune system "attacking" my skin. Maybe ask for one of them to be biopsied.

[H134]

Not tried piriton but I have simular and I was prescribed Hydromol, its thicker and more moisturising

[MusicalFurbaby]

Yeah I get ‘chillblains’ year-round, I’ve actually been diagnosed with vasculitis. The only thing that helps—apart from hydroxy, which has vastly reduced the amount of sores I get—is a cream called Anusol. It’s actually a haemorrhoid cream but super effective for the agonising itch! NB. I’m in Australia so not sure if it has a different name where you are. Good luck!

[Sus2372]

hi, I have Raynauds and am prescribed coracten slow release. I take 1 a day at night as it can lower your blood pressure. I find it really does help.

[Barbara17]

Hello. I have suffered with chilblains all my life on both my feet and hands causing horrendous itching and pain. Nothing ever worked until I mentioned it to my dermatologist who casually remarked that they were ‘lupus chilblains’. I started to treat them with the dermovate ointment I’m prescribed for my skin and it stopped the itch within a couple of days. It’s not a cure but it does work when there’s a flare up. I just wish someone had told me this 40 years ago!

[provence2022]

can anyone tell me how long theses sore fingers last….so frustrating ….many thanks

[SurferGuy]

Hi, I've had this for the last 2/3 years. My feet can get so bad that I can't walk. This happens when it's super cold outside.

I've been prescribed Fluoxetine, which is also a drug used for depression. I've been using this for a few weeks but so far hasn't worked too well.

[Whitemagnum]

I have Raynaud's too plus get excruciating chilblains but was never told to take piriton. My consultant prescribed Tacrolimus ointment 0.1%. it helps a bit but unfortunately because it is the hands,you end up washing it off at some stage! I try to put it on when I know I won't be washing up etc for a few hours+ then put white cotton gloves on+ leave it to soak in. Maybe you could ask your doc about that? Hope this helps! xx

[0105luppyabby in reply to Whitemagnum]

I have some of that cream and some Elocon steroid cream, so going to put some on overnight with gloves

[Paprika60]

Yes, piriton works. Don't take it during the day though. Only in the evening as it makes you sleepy. This is the only antihistamine that worked for me. Doctors put me on much stronger antihistamines for several years never thinking of piriton. It turned out piriton worked best. I also used Balmosa cream, the oldest chilblain cream around. You can get it from chemist easily. Works really well for aches, swelling and unbroken chilblains. Do try to have good control on your condition without steroids! I started my auto immune journey with very itchy chilblains first triggered by cold season, then it moved onto inflammation of small limbs (fingers and toes) followed by massive hive attacks in lower limbs and hands. With biopsy, I was diagnosed with urticarial vasculitis eventually. UVS is very similar to Lupus. So for years doctors monitored my condition asking to see if I was developing lupus. After 10 years, I did. The doctors didn't manage my condition well at all. Actually poorly I think because they put me on steroids immediately and my body got used to steroids so much that no other less harmful drug would work. It took me years of pain and suffering to get down and I have finally settled with hydroxy chloroquine nine years ago. Good luck and stay warm!

[0105luppyabby in reply to Paprika60]

I only use steroid cream not tablets