Chilblains

[CREATIA6_]

Hello everyone. Could you tell me please if any of you with Lupus diagnosis had any chilblains?

I am getting it a lot in year and a half and struggling a lot with it. I would appreciate any advice or similar experiences. Thank you

[weathervane]

Hi , i went through a bad phase of bouts of chilblains due to raynauds. The gp adviced me to keep my feet warm so i wear light thermal socks and furry slippers or slippers boots. She also told me to keep my core warm. This advice has really helped and I haven’t had chilblains for a long time I hope this helps , if you are still worried do speak to your doctor, take care xx

[CREATIA6_ in reply to weathervane]

Thanks so much

[SleepyWolf]

Hi, I also get chilblains on my hands, but rarely my toes (I usually wear several pairs of socks though as my feet get cold). Being on hydroxychloroquine has made the most difference to me, as far as I can see, and I get significantly fewer than before. I also wear fingerless gloves if I'm cold indoors (not to mention the three jumpers, scarf and hat).

Other than keeping warm, the only thing I could suggest is to ask if your GP or rheumatologist will prescribe you a steroid cream for them?

Best wishes.

[CREATIA6_ in reply to SleepyWolf]

Thank you for your reply. Best regards

[Tanitani]

Do you have reynauds ?

[CREATIA6_ in reply to Tanitani]

No that I know but interesting enough, went to see dermatologist few weeks ago and have seen a new lady who printed few papers about Reynauds.

[Tanitani in reply to CREATIA6_]

If your fingers turn white with exposure to cold and then turn blue then red when warming them up that's raynauds

[Minnie2000]

Hi, I suffer from chilblains everytime the weather turns colder. I just use an over the counter chilblain cream and find this really effective. Like everyone else I always try and have something warm on my feet. Hope this helps.

[CREATIA6_ in reply to Minnie2000]

Thank you for your reply .

[Gizmok9]

I’ve had them about 4-5 years, warm socks, slippers and warm loose fitting shoes help. I never go bare foot. There is heated insoles you can get too. Mine are improving now I’m living in a house with central heating it’s eventually making a difference, but I can aggravate them in summer even, if not kept warm enough. I Was given a raynaulds medication but that gave us headaches.

[CREATIA6_ in reply to Gizmok9]

Thank you for your reply.

[tiredmum]

I used to have chilblains 9 months of the year on my fingers and toes. I wear normal socks with a pair of heat holders. They are excellent. I also carry a heated wheat bag when indoors. I wear 2 pairs of gloves when outside and thermal socks. I also found being on anticoagulant for my APS has really helped and I hardly suffer from them now.

[CREATIA6_ in reply to tiredmum]

Thank you for your reply. Best regards

[Bessy01]

I have SLE also my daughter has SLE she suffers badly with chilblains in winter her consultant gave her some medication but won’t take it because of the side effects. He told her to wear thick socks to keep them warm she has a lot of scarring on her feet.

[CREATIA6_ in reply to Bessy01]

Thank you

[Barbara17]

Hello. I have suffered from chilblains for as long as I can remember. My dermatologist thinks it’s part of my scle and keeping my feet warm does help. When they get too bad I put some of my dermovate ointment on them and that does seem to help too.

[CREATIA6_ in reply to Barbara17]

Thank you for your reply. Best regards

[Froggy145]

Hi! I’ve had a lot of issues with chilblains and it was one of my most painful symptoms. Balmosa cream helps once you’ve got them. To prevent, I bought a pair of microwaveable slippers, and an electric blanket to keep my whole leg warm. I do find though, that for me it’s not really the cold that causes them. Sometimes no matter how warm I am I’ll still get them, so I think it’s more a symptom of my immune system attacking my tissues, rather than the cold. But I could be wrong, I’m not a doctor!

[CREATIA6_ in reply to Froggy145]

I agree with you about immune system attacking tissue, somehow makes sense. Thank you for your reply. Best regards

[JCZW]

Hi Croatia I agree with weathervane I also have raynaulds and my feet were getting really sore the podiatrist recommended that I keep my feet warm especially keeping my core body temperature always warm so far this year it has worked. I have several types of socks from thin to very thick and wear them according to the weather.

[CREATIA6_ in reply to JCZW]

Right, so few pair of socks and jumpers will sort it out. Great. I am on it! Thank you so much for your reply. Best regards

[strawberrylips]

When I was a child I suffered severely with chilblains. This was years before my SLE diagnosis.Could they of been a sign something was wrong with my immune system?

This answers many questions for me jx

[MusicalFurbaby]

Hi CREATIA6, sure thing! About 7 years ago I developed something that looked like chilblains, but has actually just been diagnosed by biopsy as vasculitis. Initially it behaved just like chilblains: sores on feet triggered by cold weather, severe itching, took months to resolve. But the chilblains started coming earlier and earlier, until this year when they arrived during my summer holiday. I now have these sores year-round on both my hands and feet.

I’ve been living with lupus for 15 (or more) years, and I believe from Dr Google that lupus and vasculitis are correlated. So if your current treatments stop working, I’d recommend getting a referral to a dermatologist for biopsy, just to make sure you’re not missing anything.

I have tried many over-the-counters for these sores! The only one that helps is Anusol, a haemorrhoid cream!

[CREATIA6_ in reply to MusicalFurbaby]

Thank you so much for your reply. Sorry to hear you are struggling. Best regards

[CREATIA6_]

I would like to thank everyone for taking some time to reply me. I really appreciate. Thank you