Abnormal mri - fluid on brain: Hi guys, My rhuemy... - LUPUS UK

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Abnormal mri - fluid on brain

F1zz profile image
F1zz
12 Replies

Hi guys,

My rhuemy (who ive been sceptical about forawhile) told me i had evidence of white matter changes but nothing to worry about. He referred me to neurology for my tremor amd cognitive disfunction.

My chiro had requested to see scans as she was assessing other joints. On seeing they had sent my brain ones amd knowing id been feeling frustrated with my care she took a look at them. She has strongly suggested i get a neurolgist to look at them again as she sees fluid on my brain. She also said that if she was looking at my scans blind she would assume i had concussion. I have booked in privately for neurolgy next week. Has anyone experienced anything like this?

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F1zz profile image
F1zz
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12 Replies
Sweetnlow profile image
Sweetnlow

I too had a brain mri which showed "white matter!" Google it. It is associated with strokes, cognitive loss, dementia, balance problems, falls, depression, difficulty multitasking like walking, talking. Confusion, fatigue and personality changes. I'm not trying to be negative. As for me I want to know. My neuro told me he didn't see anything that caught his eye on my mri. I knew he was lying. Guess he figured at 72 with an aneurysm in my aorta 4cm along with lupus, and other serious health problems that I probably didn't need to know and figured something else would take me first. I went to the facility that did my brain mri and got a copy. It stated mine was mild but that I had some serious blockage of blood not flowing through the arterys in my brain. Small cerebral vessel disease. I pray your doctor will be honest and help you. It can grow rapidly. It's not fun getting old. I will change neurologist one that the elevator goes all the way up!...js Praying for you! God bless

F1zz profile image
F1zz in reply to Sweetnlow

Oh gid, im only 38

Sweetnlow profile image
Sweetnlow in reply to F1zz

Unfortunately illness knows no age limit. You are young and strong. Along with God you will be OK. Don't be around stress, be around positive people. Exercise and take care of your health. There are some great doctors they care. There are some that needs to retire. Some you have to push and be blunt with to get needed scans or mri's done along with blood work. You have to play a big part in your health plan. Don't ever leave it up to one person. Dont matter what their title is. Be active! Here if you need to chat. Have a beautiful day.

Roarah profile image
Roarah

I would trust the radiologist’s interpretation of your MRI far above a chiropractor’s. There are ranges of what is “normal” and what warrants concern based upon many factors including the subject’s age or by 38 history of migraine often leads to white matter. A second opinion is always a sound choice but you most likely will be told the same thing as the other two specialist based upon the radiologist’s report. Scan’s are read by very well trained radiologists even before your specialist sees it.

KayHimm profile image
KayHimm

Couldn’t agree more

happytulip profile image
happytulip

It's normal for the brain to include white matter, grey matter and fluid. I'd trust a radiologist who is a Dr trained in reading CT, Xray and MRI images over a Chiropractor anyday. If your chiro thinks that they would be looking at concussion if they were "looking at them blind," how so? Are they suggesting any evidence of a traumatic brain injury despite no reported mechanism of a traumatic injury?Also, a diagnosis of concussion is not always confirmed by a CT, more often it is a collection of symptoms that are present after injury.

Sorry, but there are to many questions here. Radiologists read CTs as their profession on specialist digital screens and while sometimes I agree, things can get missed, I very much doubt that a chiropractor would find something that a radiologist would miss.

Just my opinion.

Roarah profile image
Roarah

Just another thought about your chiropractor’s knowledge. Generally concussions are not evident on MRI nor CT. .

KayHimm profile image
KayHimm in reply to Roarah

That’s what I thought. When I had a concussion, I had a CT to rule out a bleed because I was on aspirin. An ENT told me once if you enough tests, you will see things. Most of them are insignificant and it just worries the patient when they see the results before they do. Happened to me with something like “hydrocephalus” on a brain MRI. I was telling her how I didn’t get any sleep that night!

Frances_UK profile image
Frances_UK

Your chiropractor is not really qualified to make that call and is worrying you unnecessarily.

F1zz profile image
F1zz

Thanks guys. Feel much less stressed now

KayHimm profile image
KayHimm in reply to F1zz

I think the neurologist will help a lot. Mine is good about explaining what things mean on MRI and putting in context. Ask specifically if they are concerned about the white matter changes. They may say you will have a follow up MRI in five years or so or that the location is not concerning.

This brain stuff can be scary. Hope you can be reassured that nothing is urgent. Your other symptoms may be related to something else - different area, medication etc. The neurologist may be able to give you medication.

Check back in and good luck.

K

MusicalFurbaby profile image
MusicalFurbaby

Hey F1zz, I was investigated last year for white matter lesions and a bunch of symptoms. My neuro did a full battery of tests and it was mostly normal. He said the brain lesions were mostly explained by my age—apparently it is normal to have 1 lesion per 10 years of your age. I’m 40, so I would be expected to have 4 lesions. I had a couple of extra though, so he asked me about my history including past migraines. He said the extra lesions can be explained by a migrainous history. He’s ordered another MRI later this year just to double-check, but at this stage he’s not worried.

Definitely go with your neuro’s expertise on this one. I Dr Googled my stuff to death and it wasn’t helpful. Google can cause unnecessary panic in these matters. Yes, it might be something, but it might also be nothing!

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