Fed Up And Stressed...

[Tots38]

I have Lupus SLE with RA and Raynauds overlap.

I've had a cough for over a year.

Chest X-rays were clear but CT scan has picked up nodules in my lungs.

I've been referred for further tests.

I also suffer from Trigeminal neuralgia.

You couldn't make my luck up lately.

Worried about these nodules more than anything else at the moment.

Has anyone else had the same problems?

I hate being ill, I don't have time for it I'm a carer to someone with more Heath problems than me..

So stressed out..

Thanks in advance x

[Hidden]

So sorry to hear how stressed you are,I totally sympathise with you .I care for my husband who has multiple illnesses,it's like we can't be ill but like you I have a multitude of things wrong with me- lupus,Sjorgrens,fybromyalgia,osteoarthritis,osteoporosis,angina etc.A few years ago I was told I have lesions on my lungs due probably to previous pneumonia and pleurisy so no further action was taken.I hope there is a simple answer as to why you have nodules,all my best wishes to you,take care xx

[Chris21]

Did the consultant say what the nodules are or are you waiting to see him? I had nodules in the large intestine but it was inflammation caused by lupus, my understanding that this is quite common to get nodules?! I too have a permanent cough and had a cat scan two years ago, I have scarring and was given a diagnosis of fibrosis.

It is hard when they use words that could mean they might have found something 'nasty', I hope it's not too long before you get an explanation and treatment if needed. X

[LUPUSadmin]

Hi Tots38 and welcome to the LUPUS UK community.

I'm sorry that you've been experiencing this. If you'd like a free information pack about lupus then you can send off for or download one from lupusuk.org.uk/contact-us.

Additionally, we have a booklet called 'Caring for Someone with Lupus'. While the booklet primarily talks about how to look after someone who has lupus, section 3 talks about the needs of the carer which might be an interesting read for you. You can find this booklet on our website here: lupusuk.org.uk/publications.

George

[loopy42]

I was told I have nodules on my lungs but was told by my specialist that until they reach a certain size they are not a problem! I also have SLE, Fibromyalgia, Pleuritic and respiratory problems, Sjogrens, Reynauds, Migraine and LADA (latent autoimmune diabetes in adulthood). I have an annual chest CT to check the nodules so might be worth finding out how big they are and can you have annual check ups?

[Heatheric]

Hi Tots38, I also have lupus SLE and trigeminal neuralgia although my consultant doesn't think they are linked - just unlucky coincidence! ~Can't help you with the nodules I'm afraid but if you need it at any time, there is a chat forum on patient.co.uk for people with trigeminal neuralgia.