Lupus and B12: Hi all Just been told i need to to... - LUPUS UK

LUPUS UK

32,137 members28,470 posts

Lupus and B12

SunshineRainyDay profile image
4 Replies

Hi all

Just been told i need to to have Hydroxocobalamin, B12 injections for a deficiency. I am on azathioprine. Anyone had - wondering what to expect?

Thanks

Written by
SunshineRainyDay profile image
SunshineRainyDay
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Spanielmadlady profile image
Spanielmadlady

Ive had b12 injections for about 10 years now.mine are every 8 weeks and in my hip.they might start you off with loading doses then put you on every 3 months.when my injection is due i get some symptoms back.for me they take 3 days to kick in.x

TGSHJ71 profile image
TGSHJ71

Hi SunshineRainyDay...what a great name......I have had the vit b12 jabs for 15 years every 3 months , but since Covid , my GP is not doing jabs , so I have a slow release tablet every day in the morning , with the jab I knew its was nearly time to be jabbed again because I did not feel as well , bit shaky , more tired , but with these slow release tabs that is not the case.Hope this helps, as for the jab itself it does sting a little , I usually had it in my arm , but one Doctor said it was ok in my " butt" , as mine was fleshy.

Take Care

whisperit profile image
whisperit

Hello,

If you have a B12 deficiency, you may be experiencing some symptoms - fatigue, a sore tongue etc - which should be relieved, once you have had enough doses to replenish your stores.

Hydroxocolbamine is just a derivative of B12. It's a safe treatment - after all, it is basically just a vitamin. I've had many jabs and not experienced anything worse than a sore arm for a day.

x

davinafrost profile image
davinafrost

Hi SunshineRainyDay, I've been having B12 jabs for about 8 years now. I'd always thought this was for my Coeliac rather than SLE 🤔. Either way they do give me a boost and I have them every 9 weeks. They're a bit stingy but worth it. I have mine upper arm. I'm sure you'll be absolutely fine! X

Not what you're looking for?