I’m new on here and I was just wondering if there was anyone that has SLE and has had their covid vaccine? I was suppose to have mine a while back and I’ve been holding off as I don’t know what the symptoms/ side effects from the vaccine are can anyone help me with this give me a little insight as to how long the side effects last or what I can expect? Is it worth doing etc ive had such a roughy ride the past 2 years im just terrified of doing anything that could potentially make me more poorly I’ve got to young children and I’m already limited to what I can do
Any help or advice is hugely appreciated on this ☺️
I have SLE and received my second jab (AZ) back in April. The only side effect I had after the first was a tender injection site. After the second I had the same plus tiredness for 48 hours.
My SLE has been well controlled for a number of years now on azathioprine and HCQ and I don't feel that anything has changed since having the vaccinations. I asked my consultant earlier in the year if I should have the vaccination and the answer was "absolutely".
Everyone is different though and only you can decide what's right for you.
Thank you my rheumatologist said I should have had it a long time ago when I saw him this week but I didn’t know which one I was suppose to have or anything so I just wanted to make sure it was the right thing for me before I booked it and I can’t find any results online, I’m sure you know yourself it’s nice to finally have found somewhere to be able to speak to people going through the same thing as you are
I had mine in feb and april as I'm immunosuppressed.my 17 year old has also had his first because of me.no major issues bar the basic side effects of headache sore arm etc.for me covid would most probably be fatal so anything the vaccine might cause would be trival by comparison.
Yes I totally agree that this site is invaluable and we all learn from each other here.
I had no choice as to which vaccine to have; it was an AZ day that day at my surgery so that's what I was given. I didn't have any strong feelings about which one I wanted and it was some time before the AZ controversy was made public. Anyway I'm the wrong side of 40 so I would still happily have AZ!
I have secondary apl with the lupus so my rheum told me I need to be careful which one I have I’ve already had DVT & PE in the past so it was really reassuring to hear other people have managed okay after having it thank you all so much
I'm also the wrong side of 40 so it was AZ for me .my youngest is under 18 so had to have Pfizer anyway.he thought his arm was going to drop off but that was all x