I have recently been diagnosed with Lupus and now realise I have been having low level flares for 10 years. This time my flare was major especially my joints that were very swollen and painful. I deteriated over 3 weeks to the point I could barely walk and then got Steroids (15mg) which started 4 weeks ago. Last week I was also put on hydroxychloroquine.
I am getting much better but the joints are still swollen in the morning and painful overnight such that they wake me up. Next week I am supposed to be reducing the steroids.
So is this it? Will I have to put up with swollen joints every morning and pain? Is this my new normal?
Should I go back to the doctor if my joints are still swollen rather than go ahead and reduce the steroids as I have been advised?
Thanks for any thoughts you have