Lupus & COVID-19 Vaccination - UPDATED 09/04/2021

[Paul_Howard]

Hi everyone,

As I'm sure most of you are aware, following a scientific review of the extremely rare occurrence of blood clots with low platelets in people who have had the Oxford/AstraZeneca COVID-19 vaccine, the MHRA has issued new precautionary recommendations.

The new recommendations are particularly relevant for people with antiphospholipid syndrome (APS) or a history of blood clots in the vein.

We have updated our information and guidance to reflect the new recommendations - lupusuk.org.uk/covid19-vacc...

It is worth noting that the MHRA's precautionary recommendations are not necessarily supported by any evidence suggesting that people with a history of APS or blood clots are at an increased risk of this extremely rare occurrence. In fact, the Expert Haematology Panel endorsed by Thrombosis UK have sent a letter to the MHRA to request they revise the guidance. You can see their letter here - thrombosisuk.org/news/post....

[Treetop33]

I appreciate no-one knows yet and reviews are ongoing. I do wonder if health agencies talk about cost-benefit of the vaccine know what it feels like when it is oneself in the frame? As someone with APS, I find anything to do with possible clotting episodes definitely the most scary of all my symptoms, and I wouldn't want to take anything that increased that risk, particularly if we aren't going to subsequently be monitored (which we aren't - we are all being left without proper medical care right now).