Just a quick reminder that this evening from 6pm (GMT) we will be live with the next in our series of virtual seminars.
This evening I will be joined by Prof Liz Jury, Dr George Robinson, Dr Anastasia Kalea, Dr Zia Knippenberg and Eleni Sotirakou (!!!) from The Centre for Rheumatology Research at UCL.
If you haven't already registered, there is still time. Just go to lupusuk-virtual.org.uk
Don't worry if you can't join us live this evening. The recording will be made available to watch in the "Video On-Demand" section of the event website within a couple of days.
Written by
Paul_Howard
Partner
To view profiles and participate in discussions please or .
Hi Paul, I missed this but would like to catch up on it when I am not in a flare. How do I catch up on it please. Remember, I am terrible with technology....sorry!
The recording is now available to watch in the 'Video on Demand' section of the website. Please log in to lupusuk-virtual.org.uk and go look for that tab on the left-hand side of the screen.
Hi Hidden - Yes, Eleni shows a preview of the new booklet in development during the event. We'll be finishing it as soon as possible and publishing it through LUPUS UK.
I did read somewhere on this site about starting new medication and covid vaccine .
I’m hoping you can help with this information
Has I’m due to start Mycophenolic last Friday , yet I’ve not had my second covid vaccine , and only just had my first last Thursday .
I was hoping to get this literature to explain to my practice doctor , has it looks like I need the second vaccine in the shortest possible time , so has I can start my treatment .
You're absolutely right. The JCVI Green Book Chapter 14a was updated on 21st January 2021. The updated guidance recommends that any patients who are due to receive planned immunosuppressive therapy should be considered for vaccination (ideally two weeks) before commencing that treatment. Where possible, it is also advised to complete both doses of the vaccine before commencing immunosuppression – this would involve offering the second vaccine dose at the recommended minimum (three or four weeks). Any decision to defer immunosuppressive therapy or to delay possible benefit from vaccination needs to be carefully considered.
I’ve not slept well last night , just pulling myself together 🐌, coffee and bran flakes ..
I’m just about to phone up rheumatology , this information is tremendously helpful , for my practice doctor in particular . He told me I should wait until my turn (end of April ) shocking really.has now I’m stuck even more with not been treated sufficiently,
Paul does it talk about steroid injections in the green book , do they consider these in the same way ?
The Green Book doesn't specifically mention injections but refers to "systemic steroids". I'm afraid I don't know what impact, if any, a steroid injection may have on immune suppression, so you may need to check that with your doctor.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Nutrition, Diet and Lupus - A professional perspective
