LUPUS UK Live Virtual Seminar - "Diet & Nutrition in Lupus" - TODAY 6pm (GMT)

[Paul_Howard]

Hi everyone,

Just a quick reminder that this evening from 6pm (GMT) we will be live with the next in our series of virtual seminars.

This evening I will be joined by Prof Liz Jury, Dr George Robinson, Dr Anastasia Kalea, Dr Zia Knippenberg and Eleni Sotirakou (!!!) from The Centre for Rheumatology Research at UCL.

If you haven't already registered, there is still time. Just go to lupusuk-virtual.org.uk

Don't worry if you can't join us live this evening. The recording will be made available to watch in the "Video On-Demand" section of the event website within a couple of days.

[Kevin53]

Thanks Paul. I’m probably slightly biased, yet these seminars are excellent! Best wishes Kevin

[CSLO]

Thanks Paul. I agree, they really are very informative. I've been watching them on demand.

[djsema]

The seminar was excellent Paul. As I’m suffering with gastric problems I found it very interesting.

Thank you Paul for letting me be part of this evening talks.

[happytulip]

Hi Paul, I missed this but would like to catch up on it when I am not in a flare. How do I catch up on it please. Remember, I am terrible with technology....sorry!

[Paul_Howard Partner LUPUS UK in reply to happytulip]

Hi happytulip .

The recording is now available to watch in the 'Video on Demand' section of the website. Please log in to lupusuk-virtual.org.uk and go look for that tab on the left-hand side of the screen.

[happytulip in reply to Paul_Howard]

Thanks Paul

[HelenL75]

Paul this was an excellent seminar and no pun intended lots of food for thought 👍🏼 thanks for organising

[Paul_Howard Partner LUPUS UK]

Hi Hidden - Yes, Eleni shows a preview of the new booklet in development during the event. We'll be finishing it as soon as possible and publishing it through LUPUS UK.

[Willow1414]

Hi Paul

I’ve just watched the seminar on Diet and Nutrition.

I found this very informative and helpful .

Much appreciated .

🦋❤️

[Willow1414]

Dear Paul

I did read somewhere on this site about starting new medication and covid vaccine .

I’m hoping you can help with this information

Has I’m due to start Mycophenolic last Friday , yet I’ve not had my second covid vaccine , and only just had my first last Thursday .

I was hoping to get this literature to explain to my practice doctor , has it looks like I need the second vaccine in the shortest possible time , so has I can start my treatment .

🦋❤️

[Paul_Howard Partner LUPUS UK in reply to Willow1414]

Hi Willow1414 ,

You're absolutely right. The JCVI Green Book Chapter 14a was updated on 21st January 2021. The updated guidance recommends that any patients who are due to receive planned immunosuppressive therapy should be considered for vaccination (ideally two weeks) before commencing that treatment. Where possible, it is also advised to complete both doses of the vaccine before commencing immunosuppression – this would involve offering the second vaccine dose at the recommended minimum (three or four weeks). Any decision to defer immunosuppressive therapy or to delay possible benefit from vaccination needs to be carefully considered.

The JCVI Green Book can be accessed here - assets.publishing.service.g...

The relevant section is on pages 15-16.

[Willow1414]

Thank you Paul

What a star 🌟🌟🌟

I’ve not slept well last night , just pulling myself together 🐌, coffee and bran flakes ..

I’m just about to phone up rheumatology , this information is tremendously helpful , for my practice doctor in particular . He told me I should wait until my turn (end of April ) shocking really.has now I’m stuck even more with not been treated sufficiently,

Paul does it talk about steroid injections in the green book , do they consider these in the same way ?

😕🦋❤️

[Paul_Howard Partner LUPUS UK in reply to Willow1414]

The Green Book doesn't specifically mention injections but refers to "systemic steroids". I'm afraid I don't know what impact, if any, a steroid injection may have on immune suppression, so you may need to check that with your doctor.

[Willow1414 in reply to Paul_Howard]

Thank you for your reply

I’ve left a message on the helpline , so hopefully will get a return call .

🦋❤️

[Willow1414 in reply to Paul_Howard]

Morning Paul

Sorry for confusion , intramuscular steroid injection is what I should say , and yes it’s a systemic steroid ,

I’m still waiting for the return call from rheumatology ?

Looking forward to the bed next seminar .

🦋❤️