Question for those with neuropathy and are taking plaquenil/ Hydroxy

[JennaShi]

Hello, quick question. For those who are taking the above meds, did you notice a difference/ relief in your neuropathy (small fiber or large fiber)? If so do, do you remember when you started to notice the relief?

I am only about 5 weeks in and don’t feel any change, so I guess this is too early to tell, the damage is permanent and or it is related to my eds? I’m going to keep this in mind as I go through this process.

Also, please enjoy the sunset, I hope it brightens your day or night wherever you are💗.

[Kelbol1]

Hi - I was getting constant sinus/face pain along with other problems which hydroxy helped with for 5 years with just minor flares then started affecting memory where I could t remember anything struggling to stay awake alongside other problems so last years was dropped dose of hydroxy and put on mycophenolate alongside - remember it taking about 6/8 weeks before I clicked and thought the hydroxy was working. The one thing I noticed with the hydroxy if they gave me plaquenil (the brand) I felt worse I seemed to be better on generic brand (most People are the opposite) Stick with it but if it isn’t working make sure you get in touch with your consultant. Good luck 🤞

[Aquamarine88]

2 years and I’ve stopped the down hill side reacted badly to generic so on half dose of hydroxychloroquine/ plaquenil 200gm Now after Inflammatory markers from 30 to 23 I am on 200 every second day Just started so I’ll Let you know how I go

Can’t bear the dreaded itch anymore!

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