Feeling Niave!!: Ok..so I haven't been diagnosed... - LUPUS UK

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Feeling Niave!!

SallyB777 profile image
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Ok..so I haven't been diagnosed with lupus, or any another autoimmune disease as I've said in previous posts..

Another round of blood tests results were back today..my WBC count is 2.8..highest it's been for nearly a year..I've had 1.2 ,1.5 etc.

My doc wants me to do another blood rest in 3months.

Autoimmune test was negative

I'm not anaemic

Basically everything came back..👍

Chest xray normal-had this as I mentioned to doc I get breathless , feels like I can't take a deep enough breath.

Got a ECG, next month

Waiting for a brain scan appt...as I get constant daily headaches.

Had migraines for 28yrs, which I take a preventive daily.

I have raynauds

Arthritis in my foot

etc, etc..

I guess what I'm asking is it possible to test negative even if you may have an autoimmune disease???

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SallyB777
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Chris21 profile image
Chris21

Hi sally B

it took 7 years before I got a diagnosis. My first test was negative and then endless investigations and various explanations why I was breathless, in pain etc. I was told it was late onset asthma, which after many arguments gave in n let them go with it and at every review they didn’t understand as to why I wasn’t following the common symptoms of asthma 😁 I also was told it was stress n anxiety. 7 years later I got taken into hospital with pancreatitis for a second time. They didn’t know why, until a student doctor discovered lupus. Since then I’ve had many other things thrown in.

So keep going and you never know......😉

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