Help: Is there like a chatting part that we could... - LUPUS UK

LUPUS UK

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Foxyvixen profile image
4 Replies

Is there like a chatting part that we could do like a chat room? Or we just do like forum style. Because I’m trying to find some thing that is in a forum. And if anybody they can help me out in that factor that would be fantastic. I am not looking for a hook up or anything like that I just want to talk someone that would maybe understand what I’m going through and being sick. So if anybody can help me in that department I would truly appreciate it thank you.

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Foxyvixen profile image
Foxyvixen
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4 Replies
Spanielmadlady profile image
Spanielmadlady

Hi we all chat freely here about our illness .no one judges and there is a wealth of experience and advice from some very friendly and caring people. Sorry to read about your struggles no wonder you feel lonely.there are many here who have fibro and lupus and I've had endometriosis so you certainly are not alone. Please do reach out to us here .sending hugs x

PMRpro profile image
PMRpro

HU doesn't have a facility for open chat - you can do it using the Chat function, the bubble at the top of the page where you can have a group of as many as you like talking to each other in private but you have to form the group/invite people to join. I belong to another forum for my own a/i disorder which is now just a chat group using the forum format simply because that is what all of us still on that forum want. It had been a large and active forum but various changes and problems on the part of the forum host meant it became much smaller and we have no new members joining. The charity that set it up has been disbanded - we are left.

Former members of my own home forum wanted a different sort of forum and left to set up chat rooms using other formats. Is that an option?

Krazykat26 profile image
Krazykat26

Hi Foxyvixen 🤗💐 U have come to the right place..welcome!!

This forum is a wonderful resource for everyone suffering from autoimmune disease..it's informative n supportive..with lots of practical tips on how to manage particular symptoms u might be having..just post a question on here n u will usually get someone who has experienced the same or similar n also what they found worked for them!!

We all understand what it's like living with this stuff 24/7 so we all support one another as we hobble along the autoimmune highway.

And that's not all!! There r loads of us..u are definitely not alone!! 🤗🌈😽😽Xx

Barbara17 profile image
Barbara17 in reply to Krazykat26

I do like the hobbling along the AI highway analogy!!! My dear husband is urging me to hurry up and get out for our walk, you’d think after all this time he’d know that hurry up and mornings don’t mix!

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