Free UCL virtual event about Sjögren and lupus

[Chanpreet_Walia]

UCL Rheumatology is hosting a FREE virtual interactive event about personalised medicine in Sjögren´s syndrome and stratifying young lupus patients by heart disease risk to improve treatment and patient outcomes.

The event is on Friday 13th Nov, 11:00 - 13:00 GMT. Register for the event at eventbrite.co.uk/e/personal...

[harmony2]

I have primary Sjogren’s Syndrome but not Lupus tho rheumatologist seems to be monitoring for years, especially when I was first diagnosed in 2004. (I was in the USA then. I’m in UK now.) Is this still appropriate for me?

[Chanpreet_Walia LUPUS UK in reply to harmony2]

Hi Harmony2,

You may find the seminar beneficial, it is free to join, I would advise signing up and joining. You can leave the session at any time.

Best wishes,

Chanpreet

[harmony2 in reply to Chanpreet_Walia]

Thank you. I liked the part about individualised care! 👏🏽👏🏽

Also I have had some intermittent lung issues. Hopefully see you on the chat. How did you become aware of it?

[Chanpreet_Walia LUPUS UK in reply to harmony2]

UCL Rheumatology reached out to LUPUS UK asking if we would like to advertise the event

[Insomniacette]

YAY!!! Thank you so much for highlighting this - I will be there!

[Chanpreet_Walia LUPUS UK in reply to Insomniacette]

No problem, I hope you find the event informative!

[weathervane in reply to Chanpreet_Walia]

Joined the zoom this morning , first time ive done one !! Found it very interesting and well explained. Its good to know what research is being carried out by these wonderful researchers, big thank you to all 😀

[harmony2 in reply to weathervane]

I was unsure if I'd make it so I didn't try to register until this morning but there was a midnight cut off to register so I couldn't get in. It's okay but I would love to hear one or two nuggets that you felt were valuable. Good to hear you were encouraged by the event and clinicians. Yay!

[weathervane in reply to harmony2]

Hi harmony , the event explained research that is being carried out by UCL . There was a talk about the blood tests they are using in their research, they are going into more detail about the genes and creating a more personalised treatment for Sjögrens and Lupus.

It was suggested that people with lupus and Sjögrens could share immune and clinical manifestations that couldnot only identify the condition but also identify better treatment selection and give more targeted therapeutic selections.

The last talk was about research being carried out looking into juvenile lupus and cardiac issues, mainly issues with coronary artery disease. They are probably going to do more research into diet , which is something that should be followed up on at appointments.

I hopefully this is helpful and that I picked correctly on these points.

It’s possible that this might become a podcast at some point??

Best wishes 😀

[Oshgosh in reply to Chanpreet_Walia]

I e been u well and have missed this.

Is it available online ?